Muscular Dystrophy Patient Gets Relief from International Business, Charity
The Sergei Fedorov Foundation and ProBed step up to help a family in need
DETROIT, June 8, 2011 /PRNewswire-USNewswire/ -- At the age of 9, Nick Torrance was diagnosed with a rare and devastating form of muscular dystrophy called Duchenne. This muscle deteriorating disease progressively weakens its victims for the rest of their lives. There is no cure.
At the age of 16, Nick is now confined to a wheelchair, requiring constant help with every facet of his life, including eating, grooming and all personal care. While Nick sleeps, his family must physically turn him over every thirty minutes, because he doesn't have the strength to move himself. The nightly ritual is physically and mentally exhausting to his caring family as well as Nick himself.
The solution was found in a bed that repositions its users automatically or by voice control. The Freedom Bed was developed by Vancouver, British Columbia's ProBed Medical Technologies, Inc. The only problem was the bed costs over $30,000 and Nick's health insurance denied the claim.
For months, the Torrance family has tried to raise the funds to pay for the bed, but only collected $5,000 in donations thus far. The Sergei Fedorov Foundation, a charity established by Sergei Fedorov that assists children in need worldwide, heard of Nick's plight and sought to offer assistance.
According to Marc Beginin, attorney and director of the Foundation, "While Nick's case was compelling, the price tag was out of reach, but together with ProBed we worked it out." Beginin called ProBed and, at the Foundation's request, ProBed waived half the payment with the Foundation picking up the rest of the tab.
"Being hockey fans ourselves, and working with many clients with muscular dystrophy, we were very excited to work with Sergei Fedorov's charity and to help out Nick and his family," said Stephen Plummer, president of ProBed.
Today, The Sergei Fedorov Foundation will present a $10,000 check on Nick Torrance's behalf for the bed. With the payments already made by the family and ProBed's generous donation, the bed will be bought and paid for.
Marc G. Beginin, Esq.
SOURCE The Sergei Fedorov Foundation