NEW YORK, Nov. 1, 2016 /PRNewswire-USNewswire/ -- In recognition of National Family Caregivers Month, the Parkinson's Disease Foundation® (PDF®), a division of the Parkinson's Foundation, is offering free resources to address unmet needs of care partners of people with Parkinson's disease. PDF invites Parkinson's disease care partners and loved ones to access our free educational programs by visiting www.pdf.org/caregivers_month.
"The lives of Parkinson's care partners are forever changed by this disease," said Leslie Peters of Colorado Springs, CO, a member of the PDF People with Parkinson's Advisory Council who was a care partner to her late mother-in-law and whose husband lives with Parkinson's. "Oftentimes, care partners are so focused on supporting our loved ones that our own needs go unaddressed. PDF is here to make sure that doesn't happen. I urge my fellow care partners to turn to PDF for information, support and resources to help ease the journey."
As the number of people living with Parkinson's disease increases — with the population expected to double by 2030 — the strain on family care partners is expected to rise as well. In a recent PDF care partner survey, the majority of the nearly 900 respondents indicated that they are primary caregivers who receive little to no help in caring for a loved one with Parkinson's. When asked about the areas in which they could benefit from greater support, resources or education, care partners pointed to stress management related to caregiving as a top concern, with many citing medical, insurance and legal issues as being particularly stressful.
In response, PDF is offering its annual caregiving online seminar on the topic of planning for the future. PDF invites care partners and their loved ones with Parkinson's to join, "Parkinson's Disease: Financial, Legal and Medical Planning Tips for Care Partners," on Tuesday, November 8 at 1:00 PM ET, led by Martin M. Shenkman, C.P.A., M.B.A., P.F.S., A.E.P., J.D., Founder, Shenkman Law. The webinar will provide practical steps to help care partners plan for the future. Free continuing education units are offered to qualifying health professionals who participate live or within 30 days, via PDF's sponsorship of the American Society on Aging.
PDF invites care partners to access additional resources, including, "Coping Skills for Care Partners," and "Cognitive Issues: Advice for Parkinson's Care Partners," by visiting its online library and to request copies of free educational materials and find help locating community resources (including care partner support groups) by contacting our National HelpLine at (800) 457-6676 or firstname.lastname@example.org.
"At PDF, we often talk about mobilizing a team — in the research, health and patient communities — to help us end Parkinson's. But without care partners, our work would be impossible," said Robin Anthony Elliott, CEO, PDF. "Their efforts to improve the health and well-being of people with Parkinson's and advance the cure cannot be underestimated."
About Parkinson's Disease (PD)
Parkinson's disease is a progressive neurological disorder that affects nearly one million people in the US and over 10 million worldwide. Parkinson's is the second most common neurodegenerative disease after Alzheimer's and is the 14th leading cause of death in the US. It is associated with a loss of motor control (e.g., shaking or tremor at rest and lack of facial expression) as well as non-motor symptoms (e.g., depression and anxiety). Although promising research is being conducted, there is currently no cure for Parkinson's disease.
About PDF Programs for Care Partners
The number of people living with Parkinson's is expected to double by 2030. This will affect the number of people needed to care for people living with Parkinson's disease. To support this growing population, PDF offers programming and services for care partners, including a toll-free National HelpLine available at (800) 457-6676, an online seminar held annually during National Family Caregivers Month, and print resources geared toward care partner needs. This year's caregiving online seminar has been made possible by educational grants from AbbVie, Inc., ACADIA Pharmaceuticals Inc. and Lundbeck LLC. It was designed in collaboration with Dallas Area Parkinsonism Society (DAPS); Houston Area Parkinson Society (HAPS); Michigan Parkinson Foundation (MPF); the Neuro Challenge Foundation (NCF); Parkinson Association of the Carolinas (PAC); Parkinson Association of the Rockies (PAR); Parkinson's Association (PA) and Parkinson Support Center of Kentuckiana (PSCKY). To learn more, visit www.pdf.org/caregivers_month.
About the Parkinson's Disease Foundation, a division of the Parkinson's Foundation
The Parkinson's Foundation is working toward a world without Parkinson's disease. Formed by the merger of National Parkinson Foundation (NPF) and the Parkinson's Disease Foundation (PDF) in August 2016, the mission of the Parkinson's Foundation is to invest in promising scientific research that will end Parkinson's disease and improve the lives of people with Parkinson's and their families, through improved treatments, support and the best care. For more information, visit www.pdf.org or www.parkinson.org or call (800) 457-6676 or (800) 4PD-INFO (473-4636).
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SOURCE Parkinson's Disease Foundation