News from Global Genes Project A wide array of domestic and global news stories; news topics include politics/government, business, technology, religion, sports/entertainment, science/nature, and health/lifestyle. Articles that appear in this section may be written in English or other languages.

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Oct 21, 2013, 05:10 ET Global Genes | Rare Project Names Andrea Epstein As New Executive Director

Barbara Lavery Appointed Foundation's First Chairman of the Board of Directors The Global Genes | Rare Project Board of Directors and staff...


Sep 16, 2013, 13:31 ET RARE Science Brings New Hope To Patients With Rare, Neglected and Orphan Diseases

Research Based Non-Profit Will Use Integrated Data Approach To Identify Therapeutics For Rare Disease Patients With Few or No Treatment Options...


Feb 07, 2013, 05:05 ET Global Genes Kicks Off #WearThatYouCare Events For World Rare Disease Day 2013

 It's time to Care about Rare™. Global Genes Project (globalgenes.org), a leading patient advocacy organization representing the rare and...


Oct 02, 2012, 05:00 ET Celebrities and Rare Disease Community Turn Out To Support Global Genes Project's 1st Annual "Tribute to Champions of Hope" Benefit

Rare Disease Industry Leaders and Advocates Honored; Recording Artists Chris Mann, Katrina Parker and Elliott Yamin Gave Touching Performances...


Sep 19, 2012, 05:15 ET Kauffman Foundation to Screen "Here. Us. Now." Documentary at Harmony Gold Theater in Los Angeles

Foundation Commissioned Emmy Award-Winning Filmmaker Rudy Poe to Chronicle Challenges in Medical System Facing a Family Battling a Fatal Rare...