News from global genes project A wide array of domestic and global news stories; news topics include politics / government, business, technology, religion, sports/entertainment, science/nature, and health/lifestyle. Articles that appear in this section may be written in English or other languages, as well.

Oct 21, 2013, 05:10 ET

Global Genes | Rare Project Names Andrea Epstein As New Executive Director

Barbara Lavery Appointed Foundation's First Chairman of the Board of Directors The Global Genes | Rare Project Board of Directors and staff...

Sep 16, 2013, 13:31 ET

RARE Science Brings New Hope To Patients With Rare, Neglected and Orphan Diseases

Research Based Non-Profit Will Use Integrated Data Approach To Identify Therapeutics For Rare Disease Patients With Few or No Treatment Options...

Sep 12, 2013, 15:44 ET

2013 Emmy Nominated Recording Artist, Andrew McMahon, To Perform At Global Genes | RARE Project's Sold Out Tribute to Champions of Hope™ Benefit

Over 500+ Patients, Advocacy Leaders, Biotech and Pharmaceutical Executives, Healthcare Philanthropists and Celebrities to Gather in Newport Beach...

Aug 19, 2013, 05:00 ET

Global Genes | RARE Project To Host Second Annual Patient Advocacy Summit

Sponsors include Amicus Therapeutics, BIO, Genzyme, Purdue Pharma, Vidara Therapeutics and Walgreens  Patients, parents, advocates,...

Jun 27, 2013, 05:05 ET

Girl Band Cimorelli To Perform at Global Genes Project's 2013 RARE Tribute to Champions of Hope™ Benefit

 Global Genes | RARE Project today announced that Cimorelli, an all-girl group popularized on YouTube and signed to Universal Music's Island...

Feb 07, 2013, 05:05 ET

Global Genes Kicks Off #WearThatYouCare Events For World Rare Disease Day 2013

 It's time to Care about Rare™. Global Genes Project (, a leading patient advocacy organization representing the rare and...

Oct 02, 2012, 05:00 ET

Celebrities and Rare Disease Community Turn Out To Support Global Genes Project's 1st Annual "Tribute to Champions of Hope" Benefit

Rare Disease Industry Leaders and Advocates Honored; Recording Artists Chris Mann, Katrina Parker and Elliott Yamin Gave Touching Performances...

Sep 19, 2012, 05:15 ET

Kauffman Foundation to Screen "Here. Us. Now." Documentary at Harmony Gold Theater in Los Angeles

Foundation Commissioned Emmy Award-Winning Filmmaker Rudy Poe to Chronicle Challenges in Medical System Facing a Family Battling a Fatal Rare...

Sep 17, 2012, 05:15 ET

Recording Artist Elliott Yamin to Duet With Singer-Songwriter and Rare Disease Patient Gracie Van Brunt at Global Genes | RARE Project Benefit

Faircraft Records/Universal Republic Recording Artist Chris Mann and Singer-Songwriter Katrina Parker Will Also Perform; Actors Jason George,...

Jun 27, 2012, 05:05 ET

Global Genes and R.A.R.E. Project Announce Tribute to Champions of Hope™ Gala to Honor Rare and Genetic Disease Pioneers, Innovators and Advocates

Henri Termeer, Biotech Legend and former President and CEO of Genzyme, To Receive Lifetime Achievement Award; Nominations Now Being Accepted For...

Feb 28, 2011, 05:05 ET

46NYC and Global Genes Project Launch 'Treat46le' T-Shirt Design to Focus Worldwide Attention on the Health Disparities Facing Rare Disease Community

95 Percent of Rare Diseases Have No Approved Drug Treatments; Treat46le T-shirt Honors Millions of Rare Disease Patients Living With Little Hope...

Feb 08, 2011, 05:00 ET

7,000 Bracelets for Hope™ Campaign Raises Awareness for Over 7000 Rare Diseases

February 28, 2011, is Rare Disease Day, but at the Global Genes Project, it's rare disease awareness day every day of the year. Leading up to Rare...

Jan 26, 2011, 05:00 ET

Global Genes Project Announces 'Wear That You Care™' Denim Awareness Campaign for Rare Disease Day 2011

Monday, February 28, 2011, is the 4th annual Rare Disease Day — a day when people worldwide will show their support for the millions of...

Nov 01, 2010, 06:00 ET

7,000 Bracelets For Hope™ - A Rare Disease Awareness Campaign

Global Genes Project Launches Blue Denim Inspired 'Cause Bracelets' To Be Distributed To Families Facing 7000 Different Types of Rare Diseases...

Sep 01, 2010, 06:00 ET

The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition

Over 15 Million Children in America Are Estimated To Suffer From 7000 Unique Rare Diseases; Children Unite As 'Ambassadors of Hope' To Win $250K...

Mar 08, 2010, 06:05 ET

250 Million People Worldwide Estimated to Suffer From Rare Disease

Global Genes Project Building International Network of Rare Disease Advocates Committed to Bringing Rare Disease into the Forefront Year-Round...

Feb 25, 2010, 06:05 ET

Rare Disease Advocates Unite to Translate Slogan of Global Genes Project

Hope – It's In Our Genes(TM) Slogan Available In Multiple Languages and Braille The Global Genes Project (,...

Feb 01, 2010, 06:05 ET

Global Genes Project to Raise Awareness for Millions of Children Living With Rare Disease

Campaign Brings Together Support from over 90 Corporations, Non-Profit Foundations, Research Institutions, Hospitals and Advocacy Groups; New Blue...

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