News from parent project muscular dystrophy A wide array of domestic and global news stories; news topics include politics / government, business, technology, religion, sports/entertainment, science/nature, and health/lifestyle. Articles that appear in this section may be written in English or other languages, as well.

Dec 18, 2014, 10:28 ET
From left to right: Stanley Nelson, MD, Center for DMD at UCLA; Thomas Sugar, PhD, Arizona State University Polytechnic School; Tom Egan, SRI International; Roy Kornbluh, SRI International; Laura Case, DPT, Duke University School of Medicine; Keith Van Houten; Annie Kennedy, PPMD; Matt Arnold, Solid Ventures; Lee Sweeney, PhD, University of Pennsylvania; Tina Duong, DPT, Children's National Medical Center; Annie Ganot; Ilan Ganot, Solid Ventures; Eytani Ganot; Andrey Zarur, PhD, Solid Ventures; Brenda Wong, MD, Comprehensive Neuromuscular Center, Cincinnati Children's; Rich Mahoney, SRI International; Gilad Hayeem, Solid Ventures; Elliott Rouse, PhD, Rehabilitation Institute of Chicago; Joel Schneider, PhD, Solid Ventures

Parent Project Muscular Dystrophy and Solid Ventures Partner on Solid Suit, an Assistive Device for Duchenne Muscular Dystrophy to be Developed by SRI International

 Parent Project Muscular Dystrophy (PPMD), a nonprofit organization dedicated to the fight to end Duchenne muscular dystrophy (Duchenne),...

Dec 16, 2014, 14:00 ET
Dr. Fawn Leigh, Director, Pediatric Neuromuscular Center and Kathi Kinnett, MSN, CNP, PPMD's Vice President of Clinical Care, along with the Pediatric Neuromuscular Center team at Massachusetts General Hospital

Parent Project Muscular Dystrophy Names Massachusetts General Hospital a Certified Duchenne Care Center

 Massachusetts General Hospital (MGH) was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), a nonprofit...

Dec 11, 2014, 10:45 ET
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Parent Project Muscular Dystrophy To Collaborate With Catabasis Pharmaceuticals, Inc. On CAT-1004 Development

Parent Project Muscular Dystrophy (PPMD), a nonprofit organization dedicated to the fight to end Duchenne muscular dystrophy (Duchenne), announced...

Dec 08, 2014, 13:45 ET
PPMD Founding President and CEO, Pat Furlong, will speak at tomorrow's briefing, asking for greater transparency and accountability from FDA in their patient engagement efforts

PPMD Calls for Greater Transparency and Accountability of FDA Patient Engagement Efforts

 Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne) is urging...

Dec 08, 2014, 10:00 ET
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Parent Project Muscular Dystrophy Awards Akashi Therapeutics, Inc. $500,000 Grant

 Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne) announced...

Nov 25, 2014, 07:00 ET
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Parent Project Muscular Dystrophy and Santhera Pharmaceuticals Team Up on Benefit/Risk Study in Duchenne

Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne) and...

Nov 19, 2014, 10:00 ET
Dr. Stan Nelson, Stanley F. Nelson, MD, Professor and Vice Chair of Human Genetics and Professor of Psychiatry within the David Geffen School of Medicine at UCLA, and Certified Duchenne Care Center, Certification Committee; Kathi Kinnett, MSN, CNP, Vice President of Clinical Care for PPMD and certified Duchenne Care Center Program Director; Kathryn R. Wagner, MD, PhD, Director of the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute; and Gary W. Goldstein, MD., President & CEO, Kennedy Krieger Institute

Parent Project Muscular Dystrophy Names Baltimore's Kennedy Krieger Institute a Certified Duchenne Care Center

 Kennedy Krieger Institute in Baltimore, Maryland was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the...

Nov 07, 2014, 14:00 ET
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Collaboration at Heart of "Strength, Science, & Stories of Inspiration" Event in Cambridge, MA

 Eric Wang, Sharif Bordbar, Albert Almada, and Chris Anselmo, colleagues from MIT, Harvard, and Boston College, together with the Myotonic...

Sep 26, 2014, 16:59 ET
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President Signs MD-CARE Act Amendments Into Law

Capping a two-year advocacy campaign led by Parent Project Muscular Dystrophy (PPMD), today President Barack Obama signed the MD-CARE Act...

Sep 17, 2014, 14:15 ET
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Parent Project Muscular Dystrophy Names Seattle Children's Hospital Certified Duchenne Care Center

Seattle Children's Hospital was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the leading advocacy...

Sep 17, 2014, 10:15 ET

Coach To Cure MD Celebrates Seventh Season With Coaches Wearing Sideline Patch For September 27 Games; Program Had Full Participation At FBS Level Last Season

For the sixth year in a row, college football coaches nationwide will join together in support of the Coach To Cure MD program, which will be held...

Sep 09, 2014, 10:15 ET
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PPMD Welcomes Annie Kennedy as Senior Vice President of Legislation & Public Policy

 Pat Furlong, Founding President and CEO of Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end...

Jul 29, 2014, 10:03 ET
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PPMD Hails House Passage of MD-CARE Act Amendments

 The House of Representatives today approved legislation to update the landmark Muscular Dystrophy Community Assistance, Research, and...

Jul 11, 2014, 08:00 ET

PPMD President Pat Furlong Testifies Before Key Congressional Committee

 Pat Furlong, Founding President and CEO of Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end...

Jul 09, 2014, 13:15 ET

PPMD and NHLBI Co-Sponsor Working Group Meeting Focused On Contemporary Cardiac Issues in Duchenne Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne) has partnered...

Jun 25, 2014, 11:00 ET
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First-Ever Patient-Initiated "Guidance for Industry" for Duchenne Muscular Dystrophy Submitted to FDA

 Parent Project Muscular Dystrophy (PPMD) and a broad coalition of stakeholders today submitted the first-ever patient advocacy-initiated draft...

Jun 23, 2014, 13:30 ET
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Illinois Honors Parent Project Muscular Dystrophy's 20th Annual Connect Conference; Designates Week of June 23 as Duchenne Muscular Dystrophy Awareness Week

 Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne) will hold...

Jun 19, 2014, 14:30 ET
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Parent Project Muscular Dystrophy Convenes Outcome Measures Meeting

 Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne) will convene...

Jun 17, 2014, 11:15 ET
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Parent Project Muscular Dystrophy Awards Children's Hospital Colorado; Names Hospital Certified Duchenne Care Center

 Children's Hospital Colorado (Children's Colorado) was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the...

Jun 09, 2014, 11:15 ET
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PPMD-led Treatment Preferences and Risk Tolerance Study Published in Clinical Therapeutics

 Parent Project Muscular Dystrophy (PPMD)  – the leading patient advocacy organization fighting to end Duchenne muscular dystrophy...