News from parent project muscular dystrophy A wide array of domestic and global news stories; news topics include politics/government, business, technology, religion, sports/entertainment, science/nature, and health/lifestyle. Articles that appear in this section may be written in English or other languages.

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Jun 28, 2016, 09:00 ET Parent Project Muscular Dystrophy Receives Grant from Marathon Pharmaceuticals to Help Support Acclaimed Certified Duchenne Care Center Program

Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), today announced...


Jun 22, 2016, 11:00 ET Parent Project Muscular Dystrophy Awards The Ohio State University Grant to Support Cardiomyopathy Therapy for Duchenne

Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), announced today...


Jun 09, 2016, 12:00 ET Parent Project Muscular Dystrophy Awards University of Washington Grant to Support Technology to Help Optimize Gene Therapy

 Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), announced...


May 16, 2016, 14:00 ET Parent Project Muscular Dystrophy Names Children's Mercy Hospital in Kansas City, MO, Certified Duchenne Care Center

 Children's Mercy Hospital (Children's Mercy) in Kansas City, Missouri, became the 11th clinic named a Certified Duchenne Care Center by Parent...


May 12, 2016, 08:00 ET Parent Project Muscular Dystrophy Convenes Bone Health and Osteoporosis Workshop

 Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne) will...


Apr 19, 2016, 16:26 ET PPMD Applauds House Committee for Recognizing Importance of Intermediate Clinical Endpoints (ICE) in FDA Reviews

Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), commended the...


Apr 19, 2016, 08:00 ET Parent Project Muscular Dystrophy Names Children's Hospital Los Angeles Certified Duchenne Care Center

 Children's Hospital Los Angeles (CHLA) became the tenth clinic named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy...


Apr 15, 2016, 07:00 ET Parent Project Muscular Dystrophy Launches Every Single One Tour

 Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne) will launch...


Apr 13, 2016, 11:00 ET Parent Project Muscular Dystrophy Convenes Pulmonary Outcomes Workshop

Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne) will convene a...


Sep 30, 2015, 12:00 ET Parent Project Muscular Dystrophy Launches Next Phase of Genetic Testing Program, Decode Duchenne in collaboration with BioMarin Pharmaceutical Inc., PTC Therapeutics, and Sarepta Therapeutics

 Parent Project Muscular Dystrophy (PPMD) today announced a collaboration with BioMarin Pharmaceutical Inc., PTC Therapeutics, and Sarepta...


Aug 12, 2015, 11:55 ET DuchenneConnect Approved for $1.4 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network

 DuchenneConnect, led by Parent Project Muscular Dystrophy (PPMD) has been approved for a three-year, $1.4 million funding award by the...


Jun 19, 2015, 07:00 ET PPMD Heralds New Legislation (S. 1597) to Strengthen Patient Voice in FDA Drug Review Process

 Parent Project Muscular Dystrophy (PPMD), the leading advocacy community striving to end Duchenne muscular dystrophy (Duchenne), praised...


Jun 12, 2015, 09:39 ET Parent Project Muscular Dystrophy Names Duke Medicine Certified Duchenne Care Center

 Duke Children's Hospital & Health Center (Duke Children's) was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy...


Apr 27, 2015, 09:55 ET Parent Project Muscular Dystrophy and Duchenne Parent Project (Netherlands) to Host International Robotics Workshop on April 27

HACKENSACK, N.J., April 27, 2015 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the...


Apr 20, 2015, 11:00 ET Parent Project Muscular Dystrophy Awards $148,000 Grant to University of Washington

 Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne) awarded...


Mar 06, 2015, 13:00 ET Parent Project Muscular Dystrophy Names Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children's Hospital a Certified Duchenne Care Center

 Stanford Comprehensive Neuromuscular Clinic at Lucile Packard Children's Hospital (Stanford) was named a Certified Duchenne Care Center by...


Feb 25, 2015, 11:30 ET Parent Project Muscular Dystrophy and Foundation to Eradicate Duchenne Award $1 Million Grant to ReveraGen BioPharma

Parent Project Muscular Dystrophy (PPMD) and Foundation to Eradicate Duchenne (FED) today announced that they will award ReveraGen BioPharma...


Feb 23, 2015, 09:30 ET PPMD Leads Duchenne Advocates to Capitol Hill to Accelerate Therapies and Quality Care

Just months after helping achieve enactment of amendments to the landmark Muscular Dystrophy CARE Act (MD-CARE Act) law, Parent Project Muscular...


Feb 16, 2015, 11:00 ET Parent Project Muscular Dystrophy Awards University of Missouri $50,000 Exploratory Grant to Explore SERCA2a in Duchenne Dog Study

 Parent Project Muscular Dystrophy (PPMD), a nonprofit organization dedicated to the fight to end Duchenne muscular dystrophy (Duchenne),...


Feb 06, 2015, 13:44 ET Parent Project Muscular Dystrophy Names University of Iowa Children's Hospital a Certified Duchenne Care Center

The University of Iowa Children's Hospital (UI Children's Hospital) was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy...


Mar 20, 2014, 14:00 ET Parent Project Muscular Dystrophy Awards Nationwide Children's Hospital; Names Hospital Certified Duchenne Care Center

Nationwide Children's Hospital was named the first Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the leading advocacy...


Feb 24, 2014, 08:00 ET PPMD Advocates Head to Washington Seeking Congressional Support to End Duchenne

More than 100 advocates seeking to end Duchenne muscular dystrophy (Duchenne) are converging on Washington for the annual Parent Project Muscular...


Feb 19, 2014, 12:53 ET DuchenneConnect Approved for Funding Award from Patient-Centered Outcomes Research Institute to Become Integral Part of New National Clinical Research Network

DuchenneConnect, a program of Parent Project Muscular Dystrophy (PPMD), is thrilled to announce receiving a funding award of $970,000 by the...


Dec 16, 2013, 14:00 ET PPMD to Lead Duchenne Community in Developing Draft Guidance to Accelerate Drug Development and FDA Review

Guidance to be Submitted to FDA by Mid-2014; Annual PPMD Advocacy Conference to Include Community Review   During a landmark...


Oct 09, 2013, 12:16 ET PPMD Calls for New Collaborative Approach to Benefit/Risk Analysis of Duchenne Therapies at FDA

Landmark Benefit/Risk Study Delivered to Agency to Support Regulatory Changes  Parent Project Muscular Dystrophy (PPMD)  –...