LYME-PAC Requests Public Hearings

Feb 21, 2000, 00:00 ET from LYME-PAC

    NEW YORK, Feb. 21 /PRNewswire/ -- LYME-PAC, a coalition of 12 regional
 Lyme patient advocacy groups in New York State, is requesting public hearings
 regarding the Department of Health's decision to take sides in a heated
 scientific and medical controversy concerning the appropriate standard for
 diagnosis and treatment of Lyme and other tick-borne diseases.
     In a letter dated December 21, 1999, Dr. Ansel Marks of the New York State
 Department of Health (NYS DOH), stated that, "Rarely if ever have the
 published guidelines indicated that anything more than two to three weeks of
 antibiotics are required to cure Lyme disease."  The experience of thousands
 of patients, together with extensive articles in peer-reviewed medical
 literature, refutes this assertion.
     There is no scientific proof that 3 weeks of antibiotics will eradicate
 the Lyme bacteria in most patients.
     Extensive articles in peer-reviewed medical journals establish that the
 testing for Lyme disease is unreliable and that the bacteria is often not
 destroyed by this 2 to 3-week treatment protocol.
     Physicians who do not adhere to this arbitrarily dictated standard of 2 to
 3 weeks of antibiotic treatment are being targeted by the DOH for licensure
 revocation hearings.  LYME-PAC believes that the DOH is violating its role as
 an honest arbiter and protector of medical conduct.
     "The DOH is taking sides in a scientific dispute, before all the science
 is in, at the cost of New Yorkers' lives and well-being.  It's inexcusable,"
 says Monica Miller, a spokesperson for the Foundation for the Advancement of
 Innovative Medicine.
     LYME-PAC calls for public hearings into the conduct of the DOH in order to
 preserve the ability of New York State's physicians to practice clinical
 medicine in accordance with their experience, best judgment and the complete
 body of scientific evidence available.  Physicians must be allowed to tailor
 treatment on a case-by-case basis.  Lyme disease is a multi-systemic disease.
 Therefore, it is absurd to treat all people with different clinical symptoms
 the same way.  The "one size fits all" approach is inherently incorrect in the
 practical application of medical science, and it is specifically failing to
 effectively address the real life medical tragedy in a large number of Lyme
 disease patients.
     A copy of the letter from Ansel Marks of the OPMC, and a packet of Medical
 Literature Abstracts, are available to the media from the Contact members
 named.
 
     For Lyme Borreliosis information online:
 http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html
 
     LYME-PAC
     LYME POLITICAL ACTION COALITION
     Post Office Box 0014
     Cathedral Station
     215 West 104th Street
     New York, NY 10025
     Lyme-pac@mail.com
 
     Suffolk County Lyme Disease Support Group
     Bob Levine
     201 Washington Avenue
     Port Jefferson, NY 11777
 
     Lyme Disease Support Group of Staten Island and Brooklyn
     Janet Jernec
     St. Vincent's Medical Center
     355 Bard Avenue
     Staten Island, NY 10310
 
     Manhattan Lyme Disease Support Group
     Joan Green
     PO Box 0014
     215 West 104th Street
     New York, NY 10025
 
     Long Island Lyme Association, Inc.
     P0 Box 1842
     North Massapequa, NY 11758
 
     Westchester Lyme Disease Support Group
     Betty Gross
     PO Box 82
     Irvington-On-Hudson, NY 10533
 
     Rockland County Lyme Disease Support Group
     Ruchana White
     60 Tranquility Road
     Suffern, NY 10901
 
     Lyme Disease Coalition of New York and Connecticut
     Barbara Goldklang
     PO Box 463
     Katonah, NY 10536
 
     Mid-Hudson Lyme Disease Support Group
     c/o Pat Smalley
     14 West Cookingham Dr.
     Staatsburg, NY 12580
 
     Hyde Park Lyme Disease Support Group
     c/o Claire Nuttall
     94 Roosevelt Rd.
     Hyde Park, NY 12538
 
     Northern Duchess Lyme Disease Support Group
     c/o Mary Belliveau
     132 Starbarrack Rd.
     Red Hook, NY 12571
 
     Southern Duchess Lyme Disease Support Group
     c/o Pat Baldt
     19 Gerald Place
     Poughkeepsie, NY 12601
 
     Hudson Valley Committee for Lyme Disease Patient Advocacy
     c/o Jill Auerbach
     143 Bart Dr.
     Poughkeepsie, NY 12603
 
     CONTACT:  Barbara Goldklang, 914-769-6243
               Susan Fein, SuFein@aol.com
               Terry Lautin, 212-945-4742
               Cathy Morrissey, 203-222-1993
               Jill Auerbach, 914-454-9414
 
 

SOURCE LYME-PAC
    NEW YORK, Feb. 21 /PRNewswire/ -- LYME-PAC, a coalition of 12 regional
 Lyme patient advocacy groups in New York State, is requesting public hearings
 regarding the Department of Health's decision to take sides in a heated
 scientific and medical controversy concerning the appropriate standard for
 diagnosis and treatment of Lyme and other tick-borne diseases.
     In a letter dated December 21, 1999, Dr. Ansel Marks of the New York State
 Department of Health (NYS DOH), stated that, "Rarely if ever have the
 published guidelines indicated that anything more than two to three weeks of
 antibiotics are required to cure Lyme disease."  The experience of thousands
 of patients, together with extensive articles in peer-reviewed medical
 literature, refutes this assertion.
     There is no scientific proof that 3 weeks of antibiotics will eradicate
 the Lyme bacteria in most patients.
     Extensive articles in peer-reviewed medical journals establish that the
 testing for Lyme disease is unreliable and that the bacteria is often not
 destroyed by this 2 to 3-week treatment protocol.
     Physicians who do not adhere to this arbitrarily dictated standard of 2 to
 3 weeks of antibiotic treatment are being targeted by the DOH for licensure
 revocation hearings.  LYME-PAC believes that the DOH is violating its role as
 an honest arbiter and protector of medical conduct.
     "The DOH is taking sides in a scientific dispute, before all the science
 is in, at the cost of New Yorkers' lives and well-being.  It's inexcusable,"
 says Monica Miller, a spokesperson for the Foundation for the Advancement of
 Innovative Medicine.
     LYME-PAC calls for public hearings into the conduct of the DOH in order to
 preserve the ability of New York State's physicians to practice clinical
 medicine in accordance with their experience, best judgment and the complete
 body of scientific evidence available.  Physicians must be allowed to tailor
 treatment on a case-by-case basis.  Lyme disease is a multi-systemic disease.
 Therefore, it is absurd to treat all people with different clinical symptoms
 the same way.  The "one size fits all" approach is inherently incorrect in the
 practical application of medical science, and it is specifically failing to
 effectively address the real life medical tragedy in a large number of Lyme
 disease patients.
     A copy of the letter from Ansel Marks of the OPMC, and a packet of Medical
 Literature Abstracts, are available to the media from the Contact members
 named.
 
     For Lyme Borreliosis information online:
 http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html
 
     LYME-PAC
     LYME POLITICAL ACTION COALITION
     Post Office Box 0014
     Cathedral Station
     215 West 104th Street
     New York, NY 10025
     Lyme-pac@mail.com
 
     Suffolk County Lyme Disease Support Group
     Bob Levine
     201 Washington Avenue
     Port Jefferson, NY 11777
 
     Lyme Disease Support Group of Staten Island and Brooklyn
     Janet Jernec
     St. Vincent's Medical Center
     355 Bard Avenue
     Staten Island, NY 10310
 
     Manhattan Lyme Disease Support Group
     Joan Green
     PO Box 0014
     215 West 104th Street
     New York, NY 10025
 
     Long Island Lyme Association, Inc.
     P0 Box 1842
     North Massapequa, NY 11758
 
     Westchester Lyme Disease Support Group
     Betty Gross
     PO Box 82
     Irvington-On-Hudson, NY 10533
 
     Rockland County Lyme Disease Support Group
     Ruchana White
     60 Tranquility Road
     Suffern, NY 10901
 
     Lyme Disease Coalition of New York and Connecticut
     Barbara Goldklang
     PO Box 463
     Katonah, NY 10536
 
     Mid-Hudson Lyme Disease Support Group
     c/o Pat Smalley
     14 West Cookingham Dr.
     Staatsburg, NY 12580
 
     Hyde Park Lyme Disease Support Group
     c/o Claire Nuttall
     94 Roosevelt Rd.
     Hyde Park, NY 12538
 
     Northern Duchess Lyme Disease Support Group
     c/o Mary Belliveau
     132 Starbarrack Rd.
     Red Hook, NY 12571
 
     Southern Duchess Lyme Disease Support Group
     c/o Pat Baldt
     19 Gerald Place
     Poughkeepsie, NY 12601
 
     Hudson Valley Committee for Lyme Disease Patient Advocacy
     c/o Jill Auerbach
     143 Bart Dr.
     Poughkeepsie, NY 12603
 
     CONTACT:  Barbara Goldklang, 914-769-6243
               Susan Fein, SuFein@aol.com
               Terry Lautin, 212-945-4742
               Cathy Morrissey, 203-222-1993
               Jill Auerbach, 914-454-9414
 
 SOURCE  LYME-PAC