BURBANK, Calif., Nov. 13, 2015 /PRNewswire/ -- phaware global association (phaware) is a new non-profit dedicated to creating global awareness about pulmonary hypertension through engagement and innovation to forge a new course to a cure.
Pulmonary hypertension (PH) is a rare, chronic lung disease that affects the functioning of the heart and can lead to right heart failure. PH patients experience symptoms such as shortness of breath, dizziness and fatigue. While there's currently no cure, there are 12 FDA-approved therapies. Without treatment, mean survivability is 2.8 years.
"The organization was born out of a simple hypothesis," said phaware Co-Founder and President, Steve Van Wormer. "If we capture a single patient... save one life... what will it be worth?" Van Wormer posed that question and two of the industry's leading pharmaceutical companies took notice. "We're thankful that Actelion and Bayer share in our vision to increase global awareness for this rare lung disease," said Van Wormer. Leveraging today's hardware and software technology tools, along with the power of social and mass media marketing, phaware continues to reach out to patients, connect medical professionals, educate the general population, and activate industry decision makers. They strive for the day when no patient goes undiagnosed or misdiagnosed. Thanks to their new phaware365 app, the organization hopes the global community will engage for a cure in a whole new way.
phaware365 Global Selfie Stream
phaware collaborated with the Detroit based Pixo Group to create a social app that lets users show the world they are #phaware of PH and Chronic Thromboembolic Pulmonary Hypertension (CTEPH). App users can: snap a selfie, decorate their photos, customize them with PH facts, add awareness stickers, and participate in global activations. They can post their images across social media or share them directly with phaware to include them on the phaware365 Selfie Stream to tell the global PH story. "It doesn't matter if you live in Burbank or Buenos Aires, Barcelona or Beijing, now you can participate in awareness activations like the #BlueLipKiss Challenge or #ManiUpForACure," said Van Wormer. Thanks to PUSH technology, phaware will also be able to turn phaware365's in-app communication to a two way street, allowing global users to communicate with the organization directly through the app. "phaware and Pixo Group have additional in-app surprises in store for 2016," said Van Wormer. "We are already hard at work on additions for February's Rare Disease Day and May's World PH Day."
Learn how you can engage for a cure at phaware.global. The phaware365 and phaware mobile apps are available on the iTunes and Google Play app stores. Follow @phaware on Facebook, Twitter, Instagram and Pinterest
phaware sponsorship support provided by Actelion Pharmaceuticals US, Inc. and Bayer HealthCare.
Stephen Van Wormer
SOURCE phaware global association