Conference Educates Families and Professionals about Obesity-Related Genetic Disorder Prader-Willi Syndrome
REDONDO BEACH, Calif., Sept. 29, 2016 /PRNewswire-USNewswire/ -- Prader-Willi California Foundation will host its annual state conference to educate families and professionals caring for a child or adult diagnosed with Prader-Willi syndrome, a rare and extraordinarily complex genetic disorder. The conference will be held on Saturday, November 5 at the Double Tree by Hilton in Sacramento.
Symptoms of Prader-Willi syndrome include weak muscles, growth failure, cognitive and learning challenges, delayed developmental milestones, gastroenterological issues, incomplete sexual development, slowed metabolic rate, and its hallmark symptoms: an insatiable drive to eat and behavioral symptoms similar to and often more severe than Autism.
No known medication controls or even reduces the insatiable appetite. Undiagnosed and unmanaged, PWS causes morbid obesity and premature death. But there are management strategies that save lives and improve the quality of life of all who are impacted by this complex medical disorder. A diagnosis of PWS does not have to mean morbid obesity.
This year's conference focuses on Past, Present, and Future perspectives of PWS. Experts will present on such topics as current research on PWS, updates on growth hormone and other medications in PWS, the orthopedics of PWS, and what's happening across the United States in PWS. Parents and professionals will attend breakout share sessions focusing on age specific issues: Birth to 5 Years, School Age Years, Adult Years, and Spanish Language. The simultaneous Youth and Adult Program provides persons with PWS and their siblings a fun-filled day of movement and music-themed activities including games, arts and crafts, and a dance party. There will be a Meet and Greet Mixer in the hotel's bar foyer Friday, November 4th at 7:00 p.m.
WHAT: Prader-Willi Syndrome Annual State Conference
WHEN: Saturday, November 5, 2016 - 9:00 am to 5:00 pm
WHERE: Double Tree by Hilton, 2001 Point West Way, Sacramento, CA 95815
COST: PWCF Members $85 / $150 per couple; Non-Members $100
To learn more about Prader-Willi syndrome or to register for the conference visit www.pwcf.org or contact the PWCF Office (310) 372-5053 / [email protected].
Contact: Lisa Graziano, Executive Director
310-372-5053
[email protected]
SOURCE Prader-Willi California Foundation
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