IDF Announces IDF ePHR App to Help Those Living with Primary Immunodeficiency Diseases Manage Their Health

Jul 01, 2015, 09:41 ET from Immune Deficiency Foundation

TOWSON, Md., July 1, 2015 /PRNewswire/ -- The Immune Deficiency Foundation (IDF) has announced the launch of a mobile app for IDF ePHR, the electronic health record specifically designed for the primary immunodeficiency (PI) community. IDF ePHR allows individuals and caregivers living with PI to track important health information, including medications, diagnoses, symptoms, infections, and other critical data.

The new app helps patients manage their health on-the-go by tracking goals, setting reminders and notifications in addition to viewing their info and keeping track of all their health conditions through easy-to-read charts and graphs. IDF announced the release of the app to the more than 1,300 attendees at the IDF 2015 National Conference in New Orleans, June 26. 

"We are extremely excited to announce that the IDF ePHR now has an app," said Marcia Boyle, IDF President & Founder. "People living with PI tend to have extensive health records. By building on our legacy of utilizing innovative technology to help patients, the IDF ePHR app now gives our community a simple, secure way to keep their health information organized and always accessible on a smartphone or tablet."

IDF ePHR, powered by Get Real Health's InstantPHR®, was rolled out in fall 2014 and is now used by over 1,600 patients. Patients can download medical records to their ePHR from participating providers quickly and easily using Blue Button+ technology. They can also sync Microsoft Health Vault accounts with ePHR accounts to access information from various labs, pharmacy systems, personal health devices and health resources. IDF is the first organization to utilize the Get Real Health's InstantPHR mobile app.

IDF ePHR is also a part of PI CONNECT, the IDF Patient-Powered Research Network, which allows consenting patients to share anonymous data with the United States Immunodeficiency Network (USIDNET) for research. The long-term goal of PI CONNECT is to boost the efficiency of research and shift away from investigator studies to patient-centered studies, where patient experience is the driver toward change.

The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with PI through advocacy, education and research. There are approximately 250,000 people who are diagnosed with PI in the U.S., and thousands more go undetected.

SOURCE Immune Deficiency Foundation