Lennox-Gastaut Syndrome Meeting of the Minds Highlights Research to Advance Evidence-Based LGS Care

PHILADELPHIA, July 14, 2025 /PRNewswire/ -- On July 21-22, 2025, the Lennox-Gastaut Syndrome (LGS) Foundation will bring together hundreds of caregivers researchers, healthcare providers, clinical trialists, scientists, advocacy group members, and industry partners for the Foundation's third biennial LGS Research Meeting of the Minds.

LGS is a severe, life-threatening epilepsy syndrome that develops in children and leads to frequent seizures, cognitive decline, and lifelong disability. There are no cures for LGS, and the LGS Foundation is the only global organization dedicated to improving the lives of individuals and families impacted by LGS through advancing research, awareness, education, and family support.

"Right now, seizures in LGS are treated by trying medication after medication in hopes that one will work. There is no data to support which of the more than 40 anti-seizure treatments to use and some treatments can make seizures worse," says Tracy Dixon-Salazar, PhD, Executive Director of the LGS Foundation and Mom to Savannah, who recently passed away at the age of 31 years from a fatal seizure due to LGS. "This meeting will highlight research being done to find the right treatment for the right person with LGS at the right time. The time for precision treatment in LGS is here."

Throughout this research conference, scientific and family experts from around the world will discuss advancing evidence-based LGS care across the lifespan.

The goal of this important meeting is for patient-families and researchers to work together to:

• Evaluate the current state of diagnosing and treating LGS across the lifespan.
• Learn about methods for conducting evidence-based research in LGS and associated Developmental and Epileptic Encephalopathies (DEEs)
• Analyze ongoing research efforts to create new evidence for LGS treatment for each patient and when that treatment should be used.

Learnings from this meeting will inform the LGS Foundation's funding strategy for 2025 and beyond.

Meeting presentations will be recorded and made available after the conference. For more information, visit the LGS Foundation's website.

About the LGS Foundation

The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS. It educates the public about LGS, supports families impacted by the condition, and drives research to find better treatments, and one day, the cures.

SOURCE Lennox-Gastaut Syndrome (LGS) Foundation