HACKENSACK, N.J., Sept. 27, 2018 /PRNewswire/ -- For the last 9 years, the Greiner family has hosted Miles for Matthew, a 5K and 10K race in Greensboro, North Carolina that supports Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne). To date, the Greiners have raised over $160,000 with nearly 3,000 participants pounding the pavement in honor of Matthew, who lives with Duchenne. On Saturday, September 29, the family will host the 10th anniversary of this fantastic community event.
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 5,000 live male births.
"Matthew is an amazing 12-year-old boy who loves reading, history, animals, and sports – especially football and the Carolina Panthers. To see the outpouring of support from this community year after year, and to watch that support continue to grow has been overwhelming for Matthew, me, and my husband Bobby," said Allison Greiner, Matthew's mother. "He is curious, brave, determined, and has the most infectious laugh. He also happens to have Duchenne muscular dystrophy, a disease that has never defined him or our family. And as of today, Duchenne has not put too many limits on him. We want to keep it that way. Which is why we created Miles for Matthew and chose to support Parent Project Muscular Dystrophy and the incredible work they are doing for all people with Duchenne."
Matthew has participated in two clinical trials, in the hopes that these therapies will be a potential treatment for Duchenne. He has two siblings, Owen and Mackenzie. The Greiners have hosted a variety of fundraising events since Matthew was diagnosed and Allison serves as a Connect Coordinator for PPMD, providing outreach to families in the North Carolina area affected by Duchenne.
"The Greiners are one of those 'roll up your sleeves and get the job done' kind of families. Since we met them a decade ago, they have been leaders in the fight to end Duchenne in their community. We congratulate them on this milestone event and the incredible success of Miles for Matthew, and thank them for their tireless energy and determination. They are part of the PPMD family and we are lucky to have them," said Pat Furlong, Founding President & CEO of PPMD.
It's not too late to join the fun! Register for Miles for Matthew or contribute to the fundraising effort by visiting their website. To learn more about Parent Project Muscular Dystrophy, visit www.ParentProjectMD.org.
About Parent Project Muscular Dystrophy
We demand optimal care standards and ensure every family has access to expert healthcare providers, cutting edge treatments, and a community of support. We invest deeply in treatments for this generation of Duchenne patients and in research that will benefit future generations. Our advocacy efforts have secured hundreds of millions of dollars in funding and won two FDA approvals.
Everything we do—and everything we have done since our founding in 1994—helps those with Duchenne live longer, stronger lives. We will not rest until we end Duchenne for every single person affected by the disease. Join our fight against Duchenne at EndDuchenne.org. Follow PPMD on Facebook, Twitter, and YouTube.
SOURCE Parent Project Muscular Dystrophy