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Shire soutient la Journée internationale des maladies rares 2011


News provided by

Shire

Feb 28, 2011, 08:41 ET

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CAMBRIDGE, Massachusetts et BASINGSTOKE, Angleterre, February 28, 2011 /PRNewswire/ -- La société biopharmaceutique Shire plc (LSE : SHP, NASDAQ : SHPGY) a annoncé aujourd'hui son soutien à la Journée internationale des maladies rares, se joignant aux malades, médecins et associations de patients afin de sensibiliser l'opinion mondiale sur les maladies rares en tant que problème de santé publique, et de souligner la nécessité d'une meilleure compréhension et connaissance de ces maladies.

Pour accéder au Multimedia News Release, veuillez cliquer sur le lien:

http://multivu.prnewswire.com/mnr/prne/shire/47608/

La Journée est coordonnée par l'Organisation européenne des maladies rares (EURORDIS) et son pendant américain (NORD). L'objectif est d'attirer l'attention sur les lacunes qui existent de par le monde dans les systèmes de soins pour les patients atteints de maladies rares, et de travailler sur des solutions globales.

On estime qu'entre 5 000 et 8 000 maladies rares affectent environ 250 millions de personnes dans le monde. En tant que leader dans le secteur des maladies orphelines depuis plus de vingt ans, Shire a concentré son activité dans la recherche, le développement et la mise sur le marché de traitements contre la maladie de Fabry, l'angio-oedème héréditaire (AOH), la maladie de Hunter et la maladie de Gaucher, ainsi que dans la conception de nouvelles solutions et produits innovants pour traiter les maladies rares.

<< Pour de nombreux patients et leurs familles, le parcours du diagnostic au traitement qui en découle peut être un processus très long et compliqué >>, explique Sylvie Grégoire, Présidente de Shire Human Genetic Therapies (HGT). << Shire s'est engagé à aider les personnes dont les conditions de vie se dégradent à vivre mieux - et pour nous, cela signifie améliorer l'accès à l'information et mettre à disposition des traitements pour ces maladies rares. Nous sommes fiers de soutenir la Journée internationale des maladies rares et espérons qu'elle permettra de mettre en avant les personnes formidables qui composent cette communauté de patients atteints de maladies rares, ainsi que leur situation unique et importante en tant que problème de santé publique à l'échelle mondiale >>.

Les initiatives de Shire à l'occasion de la Journée internationale des maladies rares incluent :

- La mise à jour du site BraveCommunity.com ( http://www.bravecommunity.com/);

- Le soutien à la campagne "Wear That You Care(TM)" du Global Genes Project (http://www.globalgenesproject.org/)

- Le parrainage du premier événement de sensibilisation << STOP RARE >> à Lausanne et de la conférence << Wissen Heilt! >> organisée à Bâle le 26 février.

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