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      Sobi will showcase extensive research and clinical outcomes at ISTH 2025


      News provided by

      Swedish Orphan Biovitrum AB

      Jun 20, 2025, 02:22 ET

      Share this article

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      STOCKHOLM, June 20, 2025 /PRNewswire/ -- Sobi® (STO: SOBI) will be presenting a wide range of clinical study updates at the annual International Society on Thrombosis and Haemostasis (ISTH) Congress in Washington (21-25 June). With ten (10) presentations, Sobi's clinical teams will showcase new data for avatrombopag to treat children with ITP, surgery outcomes using efanesoctocog alfa, and abstracts on specific long-term haemophilia studies.

      "Attending ISTH is an important part of our commitment to collaboration and knowledge sharing so we can further advance treatments for those living with haemophilia, immune thrombocytopenia, and other rare blood conditions", said Lydia Abad-Franch, MD, Head of R&D and Medical Affairs, and Chief Medical Officer at Sobi.

      "We are proud to be showcasing abstracts as part of the ISTH programme, including Doptelet abstracts that present new data related to children living with ITP, Altuvoct outcomes for perioperative management, and joint health outcomes from a long-term extension study, as well as final outcomes from the B-MORE study. Many people living with rare conditions have unmet needs, and we are proud to present additional data advancing treatments for these rare conditions."

      Data to be presented at ISTH 2025

      ALTUVOCT® (efanesoctocog alfa)

      OC 64.4: Major Surgical Outcomes with 
      Efanesoctocog Alfa: 4 Years' Experience
      in the XTEND Clinical Program

      Presenting author: Liane Khoo

      Oral presentation

      Session date: Tuesday 24 June

      Session time: 14:45 - 16:00 EDT

      Location: 151 A&B, Walter E.
      Washington CC Convention Center

      OC 20.5: Treatment of Bleeding Episodes
      with Efanesoctocog Alfa in Children: XTEND-ed
      Second Interim Analysis

      Presenting author: Lynn Malec

      Oral presentation

      Session date: Sunday 22 June

      Session time: 14:45 - 16:00 EDT

      Location:  Ballroom A-C, Walter E.
      Washington CC Convention Center

      PB0847: Minor Surgeries Outcomes with
      Efanesoctocog Alfa: 4 Years' Experience in the
      XTEND Clinical Program

      Presenting author: Pratima Chowdary

      Poster presentation

      Session date: Monday 23 June

      Session time: 13:45 – 14:45 EDT

      Location: Exhibition Hall

      PB1425: Joint Health Outcomes with
      Efanesoctocog Alfa in Adults/Adolescents
      from XTEND-1 Continuing XTEND-ed

      Presenting author: Christoph Königs

      Poster presentation

      Session date: Tuesday 24 June

      Session time: 13:45 – 14:45 EDT

      Location: Exhibition Hall

      General Haemophilia

      PB0778: Addressing unmet medical needs and
      health inequities in haemophilia A: expert
      consensus statements

      Presenting author: Cédric Hermans

      Poster presentation

      Session date: Monday 23 June

      Session time: 13:45 – 14:45 EDT

      Location: Exhibition Hall

      PB0816: Extravascular distribution of factor IX:
      evidence and relevance for haemophilia B
      replacement therapy

      Presenting author: Cédric Hermans

      Poster presentation

      Session date: Monday 23 June

      Session time: 13:45 – 14:45 EDT

      Location: Exhibition Hall

      PB1439: Monitoring Joint Health in Haemophilia
      Patients in Spain: Updated Analysis of the JOIN-US
      Project

      Presenting author: María Teresa Álvarez Román

      Poster presentation

      Session date: Tuesday 24 June

      Session time: 13:45 – 14:45 EDT

      Location: Exhibition Hall

      ALPROLIX® (rFIXFc)

      PB0868: Real-World Effectiveness and Usage

      of Recombinant Factor IX Fc: Final Data from the
      B-MORE Study

      Presenting author: Heidi Glosli

      Poster presentation

      Session date: Monday 23 June

      Session time: 13:45 – 14:45 EDT

      Location: Exhibition Hall

      Doptelet® (avatrombopag)

      PB0348: Consistent Response to Avatrombopag
      for the Treatment of Children with ITP Across Various
      Baseline Characteristics

      Presenting author: Rachael F. Grace

      Poster presentation

      Session date: Sunday 22 June

      Session time: 13:45 - 14:45 EDT

      Location: Exhibition hall

      PB0364: Evaluation of Efficacy and Safety of
      Avatrombopag in Children with ITP Based on
      Disease Duration

      Presenting author: Rachael F. Grace

      Poster presentation

      Session date: Sunday 22 June

      Session time: 13:45 - 14:45 EDT

      Location: Exhibition hall

      OC 65.3: Real-World Outcomes of Avatrombopag
      Treatment in Primary ITP Stratified by Prior TPO-RA
      Exposure

      Presenting author: Srikanth Nagalla 

      Oral presentation

      Session date: Tuesday 24 June 2025

      Session time:  14:45 – 16:00 EDT

      (Presentation time currently in
      programme: 15:15 – 15:30 EDT)

      All abstracts are accessible through the official ISTH website. However, any late-breaking abstracts will only be made available later.

      About ALTUVOCT® (efanesoctocog alfa)

      ALTUVOCT® (efanesoctocog alfa) is indicated for the treatment and prophylaxis of bleeding in patients with haemophilia A. ALTUVOCT can be used for all age groups and any disease severity.

      About Elocta®/Eloctate® (efmoroctocog alfa)

      Elocta®/Eloctate® (efmoroctocog alfa) is a treatment and prophylaxis of bleeding in patients with haemophilia A. Elocta/Eloctate can be used for all age groups.

      About Alprolix® (eftrenonacog alfa)

      Alprolix® (eftrenonacog alfa) is a treatment and prophylaxis of bleeding in patients with haemophilia B. Alprolix can be used for all age groups.

      About Doptelet® (avatrombopag)

      Doptelet® (avatrombopag) is indicated for the treatment of primary chronic immune thrombocytopenia (ITP) in adult patients who are refractory to other treatments, and a treatment of severe thrombocytopenia in adult patients with chronic liver disease (CLD) who are scheduled to undergo an invasive procedure.

      About Sobi 

      Sobi is a global biopharma company unlocking the potential of breakthrough innovations, transforming everyday life for people living with rare diseases. Sobi has approximately 1,900 employees across Europe, North America, the Middle East, Asia and Australia. In 2024, revenue amounted to SEK 26 billion. Sobi's share (STO:SOBI) is listed on Nasdaq Stockholm. More about Sobi at  sobi.com and LinkedIn.

      About Sanofi

      Sanofi is an R&D driven, AI-powered biopharma company committed to improving people's lives and delivering compelling growth. Sanofi apply deep understanding of the immune system to invent medicines and vaccines that treat and protect millions of people around the world, with an innovative pipeline that could benefit millions more. Sanofi's team is guided by one purpose: to chase the miracles of science to improve people's lives; this inspires Sanofi to drive progress and deliver positive impact for Sanofi's people and the communities Sanofi serve, by addressing the most urgent healthcare, environmental, and societal challenges of our time.

      Sanofi is listed on EURONEXT: SAN andNASDAQ: SNY 

      About the Sanofi and Sobi collaboration

      Sobi and Sanofi collaborate on the development and commercialisation of Alprolix and Elocta/Eloctate. The companies also collaborate on the development and commercialisation of efanesoctocog alfa, or ALTUVIIIO® in the US, Japan, and Taiwan, and Altuvoct in Europe. Sobi has final development and commercialisation rights in the Sobi territory (essentially Europe, North Africa, Russia, and most Middle Eastern markets). Sanofi has final development and commercialisation rights in North America and all other regions in the world excluding the Sobi territory.

      Contacts 

      For details on how to contact the Sobi Investor Relations Team, please click here. For Sobi Media contacts, click here. 

      This information was brought to you by Cision http://news.cision.com

      https://news.cision.com/swedish-orphan-biovitrum-ab/r/sobi-will-showcase-extensive-research-and-clinical-outcomes-at-isth-2025,c4166601

      The following files are available for download:

      https://mb.cision.com/Main/14266/4166601/3514826.pdf

      Sobi will showcase extensive research and clinical outcomes at ISTH 2025

      Modal title

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