VOLUNTEERS IMPACTED BY FSH MUSCULAR DYSTROPHY RALLY FOR NATIONAL FUNDRAISING EVENTS

The Walk & Roll to Cure FSHD brings communities together to raise funds and awareness

RANDOLPH, Mass., Sept. 5, 2025 /PRNewswire/ -- This September and October, families, friends, and neighbors across the U.S. and Canada will gather for the Walk & Roll to Cure FSHD. These events unite communities in support of those living with facioscapulohumeral muscular dystrophy (FSHD), a relentlessly progressive disease that affects an estimated 870,000 people worldwide.

FSHD is one of the most common forms of muscular dystrophy. It causes muscle weakness that often begins in the face, shoulders, and arms, and can lead to loss of mobility and independence over time. There are currently no approved treatments, but with multiple therapies in clinical trials, the outlook is more hopeful than ever.

Since its start in 2018 with just five events, the Walk & Roll campaign has grown to more than two dozen locations across North America. A virtual event also allows people everywhere to participate. Together, these walks have raised more than $4.5 million to support research and programs for families.

"This is my first Walk & Roll season, and I'm so inspired by the dedication of our volunteer leaders," said Jess Wright, Director of National Fundraising Events for the FSHD Society. "They're the ones doing the hard work to bring these events to life, and their passion is what makes it possible for the FSHD community to come together to raise awareness and push us closer to a cure."

The Walk & Roll to Cure FSHD is organized by volunteers and supported by the FSHD Society. Funds raised fuel initiatives like BetterLife, a platform that helps people track symptoms while contributing valuable data to research, and FSHD Navigator, which provides one-on-one guidance to those living with FSHD.

For more information, to register, or to donate, visit: https://www.fshdsociety.org/WalkRoll

About the FSHD Society
The FSHD Society is the world's largest research and patient advocacy-focused organization for FSHD. For over 34 years, the organization has driven major advancements in research and treatment development, with the mission to end the pain, disability, and suffering of those living with FSHD. "As long as we are here, no patient need ever face this disease alone."

Twitter: @FSHDSociety
Facebook: FSHDSociety

SOURCE FSHD Society