ALS Association Challenged to Set a Deadline to Cure ALS by 2021
Jun 25, 2015, 12:08 ET
DURHAM, N.C., June 25, 2015 /PRNewswire/ -- "I challenge the ALS Association to tell me, tell the families who suffer now, the ones who mourn, the ones who donate and the researchers who labor - tell the world you are setting a deadline." That's how Chris Rosati begins his message to ALSA CEO Barbara Newhouse, posted at by2021.org.
"I've been fortunate to have part of my story told," says Rosati who has been featured on CBS Evening News, Huffington Post and other outlets for spreading kindness. "I'm "the Krispy Kreme guy" or "the Butterfly Effect guy". But I'm also a father, a husband, and a friend. And I'm dying - a reality which makes me an unapologetic dreamer and a fearless believer."
Today, in an inspirational and moving letter, Rosati makes the case for why ALSA should publicly declare, "We are going to cure ALS by 2021". Referencing JFK's Man on the Moon initiative, the increase in awareness and funding from the Ice Bucket Challenge, the advancements in research and the power of pressure, Rosati challenges the organization to "dare greatly". But he believes the declaration would impact more than the ALS community.
"I'm issuing this challenge because we need it. All of us," says Rosati. "This is more than an ALS challenge. It could be the story, the seemingly impossible objective that we can all rally behind, that can unite us - our land on the moon moment."
About Chris Rosati
Father, husband, friend, doughnut lover. Founder of Inspire Media Network. Generally a nice guy. But a pain in the butt to those who abhor change. Diagnosed November 2010.
Contact: Chris Rosati | 919.599.2833 | Email
ALSA | 202.465.8807
SOURCE Chris Rosati
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