Expanded Statement from The Murnaghan Family Regarding Judge Michael M. Baylson's Ruling, June 5, 2013

Jun 05, 2013, 19:41 ET from Murnaghan Family

PHILADELPHIA, June 5, 2013 /PRNewswire/ -- Effective immediately, Judge Michael Baylson has granted a 10-day temporary restraining order (TRO), instructing Secretary Sebelius of Health & Human Services (HHS) to direct OPTN to cease application of the under 12 rule as to Sarah. If there is another child in this judicial district in Sarah's circumstance, he will consider and probably grant a TRO for them if presented to him in court. The judge set the preliminary injunction hearing for June 14.

For us, this means that for the next 10 days, Sarah's placement in the queue for adult lungs will be based on the severity of her illness, and she will not be penalized for her age. Her current LAS score—the measure used to measure illness-- is a 78.

We are experiencing many emotions: relief, happiness, gratitude and, for the first time in months: hope.

We cannot say enough about the global outreach and support we've received on behalf of Sarah—people of all ages and walks of life have reached out to us, prayed for us, and asked how they could help. All we can ask is that everyone TODAY takes steps to become an organ donor. The Gift of Life honors the extreme generosity of the donors and their families, and allows some of that generous spirit to live on. You can register yourself and your family immediately to become organ donors here: http://www.organdonor.gov/becomingdonor/index.html

Thank you and God Bless.


Tracy Simon
C: 267-679-2774

The TRO order, and other back-up documentation, can be found in this dropbox: https://www.dropbox.com/sh/snpqbu15u8t3mnt/9ff6EvnJ3r


SOURCE Murnaghan Family