ALISO VIEJO, Calif., Aug. 24, 2017 /PRNewswire-USNewswire/ -- Global Genes is pleased to announce the celebrities and special guests joining in the fight against rare disease at the 6th Annual RARE Tribute to Champions of Hope awards taking place the evenings of September 15-16. The annual blue carpet events honor and celebrate rare disease advocates, scientists, patients, and supporters and the important work that they are doing to advance efforts for rare disease globally.
This year's events will present another star-studded weekend of multiple celebrity guest appearances in support of rare disease including Parks and Rec star Jim O'Heir, star of MTV's AwkwardJillian Rose Reed, Scout Compton from Nashville and Halloween 2, and Karan Brar from Disney Channel's Jessie and Bunk'd.
Global Genes ambassador and rare disease advocate, Madison McLaughlin, actress from CW's Arrow and Supernatural, will host the Friday night Champion of Hope award show. Madison strives to create awareness, raise funds, and form a community for those affected by rare disease like her three sisters diagnosed with HBSL. Co-host of 104.3 MYfm's Valentine in the Morning, Jillian Escoto, will host the Saturday night Tribute award show. Jillian is active in supporting The National Multiple Sclerosis Society after being diagnosed with MS in 2008.
The Tribute award show will kick-off with a performance by 8-year old singer Gavin Stevens, who touched hearts across America with his performance on NBC's Little Big Shots. Season 12 contestant of NBC's The Voice, Stephanie Rice, will perform; and viral sensation, patient advocate, and award honoree, Sparsh Shah, will join the line-up of entertainment with his inspirational musical performance and motivational message, that will impact everyone in attendance. More performances to be announced. To purchase tickets to the Tribute visit globalgenes.org/2017tribute.
The 6th Annual RARE Patient Advocacy Summit will take place prior to the Tribute to Champions of Hope September 14 – 15 and is an educational conference offering a space for members of the rare disease community to learn, share best practices, create important connections, and help catalyze powerful collaborations, all in an effort to support forward movement in rare disease. To register to attend the Summit please register at globalgenes.org/2017summit. The two-day event brings rare advocates from across the globe together culminating with the Tribute award show on Saturday, September 16.
To date the Summit sponsors include: PRA Health Sciences, Shire, Horizon Pharma, Alexion Pharmaceuticals, Genentech, Mallinckrodt Pharmaceuticals, Amicus Therapeutics, Inc., Dohmen Life Sciences Services, Novartis, EMD Serono Inc., Novartis Pharmaceuticals, Pfizer Inc., Retrophin, Inc., Sanofi Genzyme, Ultragenyx Pharmaceuticals, AveXis Inc., Audentes Therapeutics, Inc., Biogen, BioMarin Pharmaceuticals Inc., Illumina, Intercept Pharmaceuticals, Insmed Inc., Jazz Pharmaceuticals, Leadiant Biosciences, Novelion Therapeutics, Vertex Pharmaceuticals Inc., Abeona Therapeutics, Agios Pharmaceuticals, Akcea Therapeutics, Alnylam Pharmaceuticals, Barrow Neurological Institute, Biotechnology Industry Organization, BridgeBio, GenePeeks, Prometic Life Sciences, PTC Therapeutics, Recordati Rare Diseases, Regeneron Pharmaceuticals, Sobi, Spark Therapeutics, Strongbridge Biopharma, Teva Pharmaceuticals, and Child Neurology Foundation.
To date the Tribute sponsors include: PRA Health Sciences, Horizon Pharma, Amicus Therapeutics, Inc., Sanofi Genzyme, Walgreens, Healthcare at Home, Retrophin, Inc., Vertex Pharmaceuticals Inc., Akcea Therapeutics , Audentes Therapeutics, Inc., AveXis, Inc., Biogen, BioMarin Pharmaceutical Inc., Catalyst Pharmaceuticals, Dohmen Life Science Services, EMD Serono, Inc., Genentech, Illumina, Jazz Pharmaceuticals, Leadiant Biosciences, Mallinckrodt Pharmaceuticals, Novartis Pharmaceuticals, Novelion Therapeutics, Recordati Rare Diseases and Strongbridge Biopharma.