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Global Genes®, a leading rare disease patient advocacy organization, in partnership with the Orphan Disease Center at the Perelman School of Medicine ...
Global Genes, a leading international rare disease advocacy organization, announced today the expansion of the RARE Patient Impact Grant program to...
Global Genes and the EveryLife Foundation for Rare Diseases, both leading rare patient advocacy organizations, are pleased to announce the fourth...
Global Genes, a leading international rare disease advocacy organization, announced today its growth plan to deliver on the promise of improving the...
RARE in the Square Union Square, San Francisco January 13-15, 2020 8:00 a.m. – 5:00 p.m., daily WHO: Global Genes, Allies in Rare Disease WHAT: Event ...
Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2020 RARE Patient Impact Grant recipients. The 20...
Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the return of the fourth annual RARE in the Square, an...
Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2019 RARE Compassion Project participants who have been ...
The rapid progress of technology is creating an opportunity to improve the prospects many people with rare diseases face today, but patient...
On September 1, 2019, Kimberly Haugstad will join Global Genes® as its chief executive officer. Haugstad brings more than a decade of valuable and...
Global Genes® is honoring the incredible work of rare disease advocates from around the world at the 8th Annual RARE Champions of Hope Celebration...
Global Genes® is pleased to announce the 2019 award recipients to be honored following the 8th Annual RARE Patient Advocacy Summit on Friday,...
Global Genes®, a leading rare disease patient advocacy organization, in partnership with the Orphan Disease Center (ODC) in the Perelman School of...
Leading rare disease patient advocacy organizations, Global Genes and the EveryLife Foundation for Rare Diseases, are pleased to announce the third...
In honor of World Rare Disease Day tomorrow, Global Genes®, a leading rare disease patient advocacy organization, takes action across the United...
Global Genes, a leading rare disease patient advocacy organization, launches into a month-long observance for World Rare Disease Day, recognized...
Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2018 David R. Cox Scholarship recipient, medical...
Global Genes®, the leading rare disease patient advocacy organization, celebrates 10 years of creating a symbol of hope and a community of support...
Global Genes is pleased to announce the celebrities and special guests joining in the fight against rare disease at the 7th Annual RARE Champions of...
Global Genes® is pleased to announce the 2018 award recipients that will be honored at the 7th Annual RARE Patient Advocacy Summit (Summit) on...
More than 800 rare disease patients and advocates from around the globe will gather at Hotel Irvine in Irvine, California on October 3-4, 2018 for...
Global Genes, a leading rare disease patient advocacy organization, is pleased to announce the 4th Annual virtual Denim Dash 5k for rare diseases...
Leading rare disease patient advocacy organizations Global Genes – Allies in Rare Disease and the EveryLife Foundation for Rare Diseases are pleased...
WHAT: Global Genes®, one of the world's leading rare disease patient advocacy organizations, and the University of Pennsylvania Orphan Disease Center ...
Global Genes, a leading rare disease patient advocacy organization, and the rare disease community of more than 350 million people worldwide, are...
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