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May 07, 2020, 08:30 ET Pushing Rare Disease Drug Development Forward Despite COVID-19

Global Genes®, a leading rare disease patient advocacy organization, in partnership with the Orphan Disease Center at the Perelman School of Medicine ...


Apr 30, 2020, 08:30 ET Global Genes® Expands Grant Program to Support Rare Disease Community Struggling Due to COVID-19

Global Genes, a leading international rare disease advocacy organization, announced today the expansion of the RARE Patient Impact Grant program to...


Apr 28, 2020, 08:30 ET Global Genes and EveryLife Foundation Announce Virtual Rare Disease Leadership Tour

Global Genes and the EveryLife Foundation for Rare Diseases, both leading rare patient advocacy organizations, are pleased to announce the fourth...


Feb 25, 2020, 08:00 ET Global Genes Builds Leadership Team for Next Decade of Growth and Global Impact

Global Genes, a leading international rare disease advocacy organization, announced today its growth plan to deliver on the promise of improving the...


Jan 08, 2020, 08:00 ET Global Genes To Host Fourth Annual RARE In The Square Event Representing Voice Of Rare Disease Patients

RARE in the Square Union Square, San Francisco January 13-15, 2020 8:00 a.m. – 5:00 p.m., daily WHO: Global Genes, Allies in Rare Disease WHAT: Event ...


Dec 12, 2019, 09:00 ET Rare Disease Foundations Awarded Nearly $200,000 Through Global Genes' 2020 RARE Patient Impact Grant Program

Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2020 RARE Patient Impact Grant recipients. The 20...


Dec 05, 2019, 06:38 ET Global Genes® to Host Fourth Annual RARE in the Square January 13-15, 2020

Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the return of the fourth annual RARE in the Square, an...


Oct 16, 2019, 11:08 ET Global Genes Awards Cox Scholarships to Medical Students Across the Country through RARE Compassion Project

Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2019 RARE Compassion Project participants who have been ...


Sep 18, 2019, 06:00 ET Global Genes Report Finds Technology Reshaping the Rare Disease Landscape, but Non-Scientific Challenges Threaten to Impede Progress

The rapid progress of technology is creating an opportunity to improve the prospects many people with rare diseases face today, but patient...


Aug 06, 2019, 12:02 ET Global Genes® Appoints New CEO, Kimberly Haugstad

On September 1, 2019, Kimberly Haugstad will join Global Genes® as its chief executive officer. Haugstad brings more than a decade of valuable and...


Aug 01, 2019, 12:02 ET Rare Disease Champions to be Honored at Global Genes' 8th Annual RARE Champion of Hope Celebration

Global Genes® is honoring the incredible work of rare disease advocates from around the world at the 8th Annual RARE Champions of Hope Celebration...


Jun 25, 2019, 06:32 ET 2019 Global Genes RARE Champion of Hope Award Recipients Announced

Global Genes® is pleased to announce the 2019 award recipients to be honored following the 8th Annual RARE Patient Advocacy Summit on Friday,...


Apr 04, 2019, 12:52 ET Global Genes® Partners with the Orphan Disease Center in the Perelman School of Medicine at the University of Pennsylvania to Host 4th Annual RARE Drug Development Symposium

Global Genes®, a leading rare disease patient advocacy organization, in partnership with the Orphan Disease Center (ODC) in the Perelman School of...


Mar 12, 2019, 13:29 ET Global Genes® and EveryLife Foundation for Rare Diseases Expand RARE on the Road - Rare Disease Leadership Tour

Leading rare disease patient advocacy organizations, Global Genes and the EveryLife Foundation for Rare Diseases, are pleased to announce the third...


Feb 27, 2019, 15:28 ET Take Action for World Rare Disease Day on February 28, 2019

In honor of World Rare Disease Day tomorrow, Global Genes®, a leading rare disease patient advocacy organization, takes action across the United...


Jan 29, 2019, 11:41 ET Global Genes® Celebrates World Rare Disease Day on February 28, 2019

Global Genes, a leading rare disease patient advocacy organization, launches into a month-long observance for World Rare Disease Day, recognized...


Nov 15, 2018, 12:30 ET Global Genes Awards Cox Scholarship for Rare Compassion to McGill University Medical Student

Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2018 David R. Cox Scholarship recipient, medical...


Nov 01, 2018, 16:22 ET Global Genes® Celebrates 10 Years of Supporting the Rare Disease Community

Global Genes®, the leading rare disease patient advocacy organization, celebrates 10 years of creating a symbol of hope and a community of support...


Aug 28, 2018, 15:00 ET Global Genes Announces Entertainers and Special Guests for 7th Annual RARE Champion of Hope Celebration

Global Genes is pleased to announce the celebrities and special guests joining in the fight against rare disease at the 7th Annual RARE Champions of...


Aug 07, 2018, 19:24 ET Global Genes® Announces RARE Champion of Hope Award Recipients to be Honored at RARE Patient Advocacy Summit

Global Genes® is pleased to announce the 2018 award recipients that will be honored at the 7th Annual RARE Patient Advocacy Summit (Summit) on...


Jul 09, 2018, 12:00 ET Global Genes® to Host 7th Annual RARE Patient Advocacy Summit October 3-4

More than 800 rare disease patients and advocates from around the globe will gather at Hotel Irvine in Irvine, California on October 3-4, 2018 for...


May 24, 2018, 01:17 ET Global Genes® Announces 4th Annual Denim Dash 5K Virtual Race for Rare Disease

Global Genes, a leading rare disease patient advocacy organization, is pleased to announce the 4th Annual virtual Denim Dash 5k for rare diseases...


Apr 26, 2018, 12:00 ET Global Genes and EveryLife Foundation Announce 2nd Annual RARE on the Road - Rare Disease Leadership Tour

Leading rare disease patient advocacy organizations Global Genes – Allies in Rare Disease and the EveryLife Foundation for Rare Diseases are pleased...


Apr 10, 2018, 12:00 ET Global Genes® Partners with University of Pennsylvania Orphan Disease Center for 2018 RARE Patient Advocacy Symposium

WHAT: Global Genes®, one of the world's leading rare disease patient advocacy organizations, and the University of Pennsylvania Orphan Disease Center ...


Feb 02, 2018, 04:14 ET Global Genes® Celebrates 11th Annual World RARE Disease Day, February 28, 2018

Global Genes, a leading rare disease patient advocacy organization, and the rare disease community of more than 350 million people worldwide, are...