How Would You Describe Epilepsy if You Only Had Four Words? UCB and Epilepsy Advocate™ Challenge National Walk for Epilepsy Attendees to Share Their Experience with Epilepsy in Four Words

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UCB

Mar 28, 2012, 10:55 ET

WASHINGTON, March 28, 2012 /PRNewswire/ -- For the more than three million Americans who live with epilepsy, gaining seizure control is a top priority.  Representatives from UCB and the Epilepsy Advocate program will travel to Washington, D.C. for the Epilepsy Foundation's National Walk for Epilepsy, shining a spotlight on the condition and demonstrating that seizure control and living beyond the boundaries of epilepsy are possible. As part of a new project known as "My Four Words," the team will share their personal stories about epilepsy in just four words and will be on hand to capture similar four-word stories from Walk participants. 

WHO:              

 

 

Epilepsy Advocate™, a community of people from across the country whose lives are directly affected by the condition.  A team of representatives will converge on Washington D.C. to spearhead the "My Four Words" project, sharing their challenges and triumphs with epilepsy to illustrate for attendees that more may be possible.

 

 

 

 

WHAT:     

 

 

The "My Four Words" project, a unique and creative outlet for people impacted by epilepsy to share their personal account of life with the condition. Four-word stories will be vividly depicted on posters during the National Walk for Epilepsy, and highlights of the project will be available online at www.facebook.com/EpilepsyAdvocate beginning in April. 

 

 

 

 

WHY:         

 

 

Three million people are touched by epilepsy, a condition that occurs across all ages, races and genders. The "My Four Words" project is intended to incite conversation about an often misunderstood condition and inspire people to challenge the standard of care, dispel the stigma and reveal the realities of living with epilepsy.

 

 

WHEN:            

Saturday, March 31, 2012 

 

8:00 a.m. "My Four Words" table opens 

 

9:00 a.m. National Walk for Epilepsy

 

 

 

 

WHERE:          

Epilepsy Advocate booth in the National Walk for Epilepsy EXPO tent

 

The National Mall

 

950 Independence Avenue Southwest

 

Washington D.C., 20560

The "My Four Words" project will continue throughout 2012. For more information, contact Andrea Levin at [email protected].

About UCB
UCB, Brussels, Belgium (www.ucb.com) is a global biopharmaceutical company focused on the discovery and development of innovative medicines and solutions to transform the lives of people living with severe diseases of the immune system or of the central nervous system. With more than 8,000 people in about 40 countries, the company generated revenue of EUR 3.2 billion in 2011. UCB is listed on Euronext Brussels (symbol: UCB).

About Epilepsy Advocate™
Created by UCB in 2006, the Epilepsy Advocate™ program offers opportunities to learn more about epilepsy and how to manage the condition.  Epilepsy Advocates are people living with epilepsy and caregivers who share their success stories with a goal of inspiring individuals in the epilepsy community to seek the best possible care and make positive changes in their lives. 

To date, over 15,000 people impacted by epilepsy have connected with Epilepsy Advocates at more than 300 live programs across the U.S.  Additionally, EpilepsyAdvocate.com and Facebook.com/EpilepsyAdvocate offer a wide variety of resources, including an engaging online radio program and motivational videos, for anyone looking for more information about epilepsy.  Epilepsy Advocate magazine is also widely read in the epilepsy community, with a readership of 100,000.  Request a free subscription. 

Epilepsy Advocate™ is a trademark of the UCB group of companies.

About the Epilepsy Foundation
The Epilepsy Foundation, a national nonprofit with affiliated organizations throughout the United States, has led the fight against epilepsy since 1968. The Foundation's mission is to stop seizures, find cures and overcome the challenges created by epilepsy. For additional information, please visit www.epilepsyfoundation.org. 

About Epilepsy
Epilepsy is a chronic neurological disorder affecting approximately 50 million people worldwide and 3 million people in the U.S. Anyone can develop epilepsy; it occurs across all ages, races and genders.  Uncontrolled seizures and medication side effects pose challenges to independent living, learning and employment, so the goal of epilepsy treatment is seizure freedom with minimal side effects.  More than one million patients in the U.S. continue to have seizures despite initial therapy, and more than one million in the U.S. continue to have seizures despite treatment with two or more therapies.  New medications and treatments give hope to those living with uncontrolled seizures.

CONTACT:

Dana Gulick

Andrea Levin

 

Cooney/Waters Group

UCB, Inc.

 

o. 212.886.2227 / m. 917.216.6268

o. 770.970.8352

 

[email protected]

[email protected]

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

SOURCE UCB