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La iniciativa sobre el tratamiento futuro MS y su cuidado da un paso adelante destacado


News provided by

MS in the 21st Century

Oct 11, 2012, 04:45 ET

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LYON, Francia, October 11, 2012 /PRNewswire/ --

La iniciativa MS in the 21st Century ha dado un importante paso adelante con su publicación aparecida en el Journal of Neurology, una publicación destacada en el área de las neurociencias que cuenta con un factor destacado de un 3,8.

El artículo publicado, titulado Future MS care: a consensus statement of the MS in the 21st Century Steering Group, detalla el trabajo de un panel de neurólogos europeos y canadienses y representantes de organizaciones paraguas, que se han reunido para definir cómo debería ser en el Siglo XXI el tratamiento de la esclerosis múltiple (MS) y los estándares de tratamiento. El "grupo de supervisión de MS in the 21st Century" tiene como finalidad también alinearse con la comunidad MS más amplia para conseguir un estándar de tratamiento mínimo y para hacer frente al actual paradigma de tratamiento.

En el transcurso de las tres reuniones, el grupo de supervisión de MS in the 21st Century recopiló una declaración consensuada, que espera actúe para llamara a la acción a los proveedores de la salud y responsables de la toma de decisiones.

La declaración de consenso comunica la visión del grupo, esto es, acceso completo al tratamiento personalizado, con el reembolso, para conseguir estar libre de la enfermedad, destacando siete áreas clave de desarrollo que crea se deben hacer frente para conseguir la visión. Son el tratamiento personalizado, dedicación de pacientes, compromiso con la investigación, formación del organismo regulador y de los temas de reembolso, nuevos objetivos para ensayos clínicos, más opciones de terapia y centros de excelencia MS.

Comentando el reciente artículo aparecido en Journal of Neurology, el presidente del grupo de supervisión de MS in the 21st, el profesor Peter Rieckmann, explicó: "La publicación de nuestra aproximación al tratamiento de MS es un destacado paso adelante, y nos ayudará en el próximo periodo venidero cuando nos dirijamos a varios accionistas, incluyendo reguladores y pacientes. Reconocemos que la existencia de una destacada colaboración por medio de la comunidad MS es vital para asegurar que los principales subyacentes en la declaración se consiguen".

Hasta la fecha, el respaldo a esta iniciativa se ha recibido por medio de varios expertos líderes en tratamientos de MS, y entre las organizaciones se incluyen la Czech Neurological Society, la MS Society, UK y el MS Trust UK.

Notas para los redactores

  1. Si desea más información contacte con MS in the 21st Century en el 01252 739717 o a través de [email protected] 
  2. La declaración de consenso de MS in the 21st Century se suministra como material de apoyo
  3. El artículo publicado está disponible en: http://www.msworldcouncil.com y a través de http://www.springerlink.com/openurl.asp?genre=article&id=doi:10.1007/s00415-012-6656-6
  4. El Journal of Neurology es una publicación internacional de prestigio que representa oficialmente a la European Neurological Society y que proporciona una fuente para publicar las comunicaciones originales y revisiones sobre neurología clínica e investigación básica relacionada en neurociencias. Más información disponible en: http://www.springer.com/medicine/neurology/journal/415
  5. El proyecto de MS in the 21st Century se puso en marcha a través de una agencia independiente, iS Health, y contó con el apoyo de una beca de formación sin restricciones de Merck Serono
  6. Los candidatos para el grupo de supervisión fueron identificados por iS Health, gracias a su experiencia en el tratamiento, administración, cuidado y abogacía de MS y con el fin de asegurar que el grupo fuera representante de varios países diferentes
  7. Los miembros del grupo de supervisión de MS in the 21st Century son:
   
    Peter Rieckmann     Neurólogo de Bamberg, Germany (Chairman)
    Alexey Boyko        Neurólogo de Moscú, Rusia
    Diego Centonze      Neurólogo de Roma, Italia
    Alasdair Coles      Neurólogo de Cambridge, Reino Unido
    Irina Elovaara      Neurólogo de Tampere, Finlandia
    Eva Havrdová        Neurólogo de Praga, República Checa
                        Neurólogo de la European Charcot Foundation, Molenhoek
    Otto Hommes         (área de Nijmegen), Países Bajos
                        Internista farmacoepidemiológico y farmacoeconomista,
    Jacques LeLorier    Montreal, Canadá
    Sarah A. Morrow     Neurólogo de Londres, Canadá
    Celia Oreja-Guevara Neurólogo de Madrid, España
                        Director interino de políticas e investigación de la UK MS
    Nick Rijke          Society, Londres, Reino Unido
    Sven Schippling     Neurólogo de Zurich, Suiza

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