LIDS Foundation Named as First National Title Sponsor of Step Forward to Cure TSC®
Nation-Wide Walk Events Benefit Tuberous Sclerosis Alliance
May 11, 2016, 12:01 ET
SILVER SPRING, Md., May 11, 2016 /PRNewswire-USNewswire/ -- The Tuberous Sclerosis Alliance (TS Alliance) recently announced LIDS Foundation as the first-ever national title sponsor of its Step Forward to Cure TSC walk program, which will now be called LIDS Step Forward to Cure TSC. These walks take place in more than 30 locations across the country, raising an average of $1 million each year to help fund research about tuberous sclerosis complex (TSC) and provide a wide array of support services for anyone affected by the disease.
TSC is a genetic disorder that causes tumors to form in vital organs, primarily in the brain, eyes, heart, kidneys, skin and lungs. It is also the leading genetic cause of both autism and epilepsy. TSC is as common as Lou Gehrig's disease or cystic fibrosis but is virtually unknown by the general population. About 50,000 people in the United States have TSC, with 1 million world wide. Currently, there is no cure.
"Because someone in the LIDS community was personally touched by this disease, we know the importance and urgency of improving the quality of life for kids living with tuberous sclerosis complex so they have the best possible lifelong opportunities," explains Bailee Reynolds, LIDS Foundation Manager. "The Step Forward to Cure TSC walks create hope for a brighter future for these children and their families, and we are proud to be a partner in this effort."
"LIDS and the LIDS Foundation have been a corporate partner of the TS Alliance for many years," says Kari Luther Rosbeck, TS Alliance President & CEO. "They've provided a variety of items for our events, such as shirts for our Step Forward to Cure TSC walks, so it's exciting to have their increased support as this year's title sponsor. Their commitment to these children and families is inspiring to our organization and those we serve."
The LIDS Step Forward to Cure TSC walk series is the TS Alliance's largest national fundraising program. These events also offer a unique opportunity for people affected by TSC and their friends and family members to gather and build their local communities.
The TS Alliance is the only national organization dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected. It works to improve quality of life for individuals and families affected by TSC by stimulating and sponsoring research; creating programs, support services and resource information; and developing and implementing public and professional education programs designed to heighten awareness of TSC.
To find a LIDS Step Forward to Cure TSC walk location or to make a donation, visit www.StepForwardtoCureTSC.org or www.tsalliance.org.
TS Alliance Media Contact:
Jaye Isham
(301) 562-9890
[email protected]
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SOURCE Tuberous Sclerosis Alliance