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The Child Neurology Foundation Presents Cannabis in Epilepsy: A Symposium Designed to Bridge the Gap in Communication Between Medical Professionals, Clinical Science, Families and Advocacy Groups

Saturday, October 29, 2016 at the 45th Child Neurology Society Annual Meeting


News provided by

Child Neurology Foundation (CNF)

Oct 19, 2016, 09:00 ET

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MINNEAPOLIS, Oct. 19, 2016 /PRNewswire-USNewswire/ -- The Child Neurology Foundation (CNF) is poised to welcome members of the Child Neurology Society (CNS) interested in seeking a deeper understanding of the current science, family experience and advocacy efforts surrounding the use of cannabis for the treatment of epilepsy. The organization will bring together thought leaders from clinical science and advocacy groups engaged in the conversation about the use of cannabis-based remedies. The symposium will be held on Saturday, October 29, 2016 during the CNS's 45th annual meeting in Vancouver, Canada.

"We're facing a new paradigm where promising science is attempting to catch up with families using a remedy that has been thought to relieve the suffering of children living with intractable epilepsy," says Amy Brin Miller, Executive Director of the Child Neurology Foundation. "The conventional model requires science to validate a treatment before use. However, the families of children with severe epilepsy we engage with tell us they cannot wait. CNF believes it's our responsibility to foster and promote the very critical conversation between providers and families to ensure the most sophisticated, safe, and reliable treatments for use are understood and employed properly."

The goal of this year's symposium is to examine the new evolution in cannabis treatment and means of furthering conversation among these diverse yet conjoined perspectives.

This year's topics include:

Understanding Current Use and Attitudes
Towards Cannabis within the Child Neurology
Community: Results from Membership and
Caregiver Surveys
Presented by: William H. Trescher, MD
President, Child Neurology Foundation
Penn State Children's Hospital
Hershey, PA

State of Science: Cannabis
Elizabeth Thiele, MD, PhD
Massachusetts General Hospital
Boston, MA

Parent Perspectives:
Cannabis Use
Catherine Jacobson, PhD
Patient Advocate and Parent
Director, Clinical Research, Tilray

Cannabis Use in Child Neurology:
Looking Forward
Anup Patel, MD
Nationwide Children's Hospital
Columbus, OH

Advocacy Voices Dravet Syndrome Foundation,
Lennox-Gastaut Syndrome Foundation,
Tuberous Sclerosis Alliance, and Child Neurology Foundation 
Amy Brin Miller, MSN, MA, PCNS-BC
Executive Director, Child Neurology Foundation

The symposium is part of CNF's cannabis education initiative that is partially supported via the generosity of GW Pharmaceuticals.

The Child Neurology Foundation is a 501c3 dedicated to serving as a collaborative center of education and support for children and their families living with neurologic conditions. Our vision is a world in which all children affected by neurologic conditions reach their full potential. To learn more, please visit our website: www.childneurologyfoundation.org

The Child Neurology Society is the preeminent non-profit professional association of pediatric neurologists in the United States, Canada, and worldwide devoted to fostering the discipline of child neurology and promoting the optimal care and welfare of children with neurological and neurodevelopmental disorders. These disorders include epilepsy, cerebral palsy, mental retardation, learning disabilities, complex metabolic diseases, nerve and muscle diseases and a host of other highly challenging conditions. To learn more about their Annual Meeting, please visit the website: www.childneurologysociety.org

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SOURCE Child Neurology Foundation (CNF)

Related Links

http://www.childneurologyfoundation.org

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