SILVER SPRING, Md., May 15, 2017 /PRNewswire-USNewswire/ -- In celebration of Tuberous Sclerosis Complex (TSC) Global Awareness Day, the Tuberous Sclerosis Alliance (TS Alliance) today announced its newest Global Alliance, the TS Alliance of Mexico. This new international partnership will enhance community support, clinical care, education and research efforts in both countries. Affecting 1 million worldwide, TSC is a rare genetic disorder that causes tumors to form in vital organs; it's also the leading genetic cause of epilepsy and autism.
"By becoming a Global Alliance of the US-based TS Alliance, we will be able to collaborate on educational resources, research and care for individuals with TSC. We are proud to become an official partner of this global program. Together we will work to raise awareness about TSC, in Mexico and around the world," said Ary Agami, President, TS Alliance of Mexico.
Officially launched in 2014 with the TS Alliance of Israel, the TS Alliance's Global Alliance program was created to address unmet needs within the global TSC community at the country level. This program provides the opportunity for the TS Alliance to share experiences and assist in the start-up or support of TSC-related organizations in other countries. A Global Alliance is a structured group of empowered and caring volunteers who work closely with the TS Alliance to facilitate local connections for individuals and families affected by TSC, raise revenue and increase awareness while supporting the mission of the organization. The TS Alliance also has a formal partnership with Tuberous Sclerosis Canada Sclérose Tubéreuse.
"The TS Alliance is thrilled to partner with this new organization in Mexico," said TS Alliance President & CEO Kari Luther Rosbeck. "We look forward to working with them to advocate for people with TSC, provide educational programs, increase awareness and offer assistance with fundraising. Of course, the ultimate goal is to improve outcomes for everyone with TSC."
The TS Alliance is dedicated to finding a cure for tuberous sclerosis complex, while improving the lives of those affected. Founded in 1974, it works to improve quality of life for individuals and families affected by TSC by stimulating and sponsoring research; creating programs, support services and resource information; and developing and implementing public and professional programs designed to heighten awareness of the disease.