Bayer Presents Preliminary Insights from Global Patient Survey at World Federation of Hemophilia 2018 World Congress
Survey results to inform treatment management strategies through life transitions for people living with hemophilia A
WHIPPANY, N.J., May 23, 2018 /PRNewswire/ -- Today, Bayer presented preliminary insights from the U.S. segment of the global HemACTIVE patient survey during a satellite symposium at the World Federation of Hemophilia 2018 World Congress in Glasgow, Scotland. These initial survey results showed that among U.S. adults living with hemophilia:
- Nine out of 10 aspire to be active or very active1, including participating in outdoor activities2
- Two out of three are not able to participate in activities they would like to3
- Three out of four make adjustments to their activities because of the condition4, due to fear of bleeds, pain, and joint damage5
- One out of two adjust their treatment, such as infuse more often6, to allow them to be more active
"Although significant progress has been made over the last two decades, people living with hemophilia are still experiencing physical and emotional burdens that can limit their ability to be active," says Mark Skinner, principal investigator of the HemACTIVE survey and past president of the World Federation of Hemophilia. "Our hope is that this survey will help us better recognize how hemophilia A impacts quality of life so physicians can better tailor care to enable patients to fully participate in the things
they enjoy."
HemACTIVE is a global research survey in which Bayer polled 330 people living with hemophilia A between the ages of 18-65 years and parents of children ages 2-18 years old living with the disease from the U.S., Germany, France and Italy. Presented today were initial results from the U.S. segment of the survey that questioned American adults ages 18-31. The survey aims to identify how hemophilia A affects the daily lives of people living with this chronic disease and to better understand the role of treatment. Final results of the HemACTIVE survey are anticipated in August 2018.
"Over the past 25 years, Bayer has been committed to understanding and adapting to the evolving needs of people living with hemophilia A," said Aleksandra Vlajnic, M.D., Vice President of Medical Affairs Hematology, Bayer U.S. "We look forward to working with our partners in the hemophilia community to further analyze and apply these survey results and to explore new ways to help patients with hemophilia A."
About Hemophilia A
Hemophilia has an estimated frequency of 1 in 5,000 male live births and affects approximately 400,000 people around the world, including an estimated 20,000 in the U.S. today.7 It is a largely inherited disorder in which one of the proteins needed to form blood clots is missing or reduced. In hemophilia A, the most common type of hemophilia, blood clotting is impaired as a result of a lack or defect of coagulation Factor VIII (FVIII). Patients therefore repeatedly experience bleeds in muscles, joints or other tissues, which can result in chronic joint damage. External injuries, even if they are trivial, can have serious consequences if not treated appropriately, as the blood clots more slowly than in healthy individuals.
Hemophilia treatment has advanced considerably over the past decades with life expectancy for people with hemophilia significantly increasing from about 11.4 years in 1920 to a potentially normal life span today.8 Today's research aims to reduce burden of treatment and improve the quality of life of people with hemophilia.
Bayer: Science For A Better Life
Bayer is a global enterprise with core competencies in the Life Science fields of health care and agriculture. Its products and services are designed to benefit people and improve their quality of life. At the same time, the Group aims to create value through innovation, growth and high earning power. Bayer is committed to the principles of sustainable development and to its social and ethical responsibilities as a corporate citizen. In fiscal 2017, the Group employed around 99,800 people and had sales of EUR 35.0 billion. Capital expenditures amounted to EUR 2.4 billion, R&D expenses to EUR 4.5 billion. For more information, go to www.bayer.us.
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1 HemACTIVE, Table 19, A9. How active do you wish you could be in your daily life?/does your child wish they could be in their daily life?
2 HemACTIVE, Table 28, A13C. Which of the following activities do you/does your child wish you/they could do?
3 HemACTIVE, Table 36, B3. To what extent do you agree or disagree with the following statements? I am/My child is not able to participate in activities I/they would like to do because of my/their hemophilia
4 HemACTIVE, Table 30, A15. How many days in a typical week do you make adjustments to your/does your child make adjustments to their activity level because of hemophilia?
5 HemACTIVE, Table 32, A17. Why do you make adjustments to your/does your child make adjustments to their activity level because of hemophilia?
6 HemACTIVE, Table 77, C15. Below are several statements about hemophilia products. For each two pairs of statements, please select the one point on the scale that best describes the way you feel about your/child's hemophilia products.
7 Fast Facts (2015, July 15). Retrieved October 19, 2017, from: https://www.hemophilia.org/About-Us/Fast-Facts
8 Hemophilia and Aging (2014). Retrieved October 19, 2017 from: https://www.hemophilia.org/sites/default/files/document/files/Nurses-Guide-Chapter-17-Aging.pdf
SOURCE Bayer
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