CHICAGO, Nov. 19, 2015 /PRNewswire-USNewswire/ -- The Pulmonary Fibrosis Foundation (PFF) today announced that it has acquired all rights to the Daughters of Pulmonary Fibrosis program from the Coalition for Pulmonary Fibrosis (CPF), a California-based 501c3 nonprofit public benefit organization serving the pulmonary fibrosis (PF) community. The Foundation has assumed administration of the Daughters of PF program and funds raised through this effort will go toward serving the PF patient community and advocating for caregiver needs.
"The Pulmonary Fibrosis Foundation has been inspired by the efforts of the Daughters program since its inception. We look forward to welcoming members of the Daughters program and making an even greater impact on behalf of the PF community," said Patti Tuomey, EdD, president and chief executive officer of the PFF. "The Foundation will continue to cultivate the Daughters program as one of our signature programs, with an expanded focus on identifying and developing resources for the caregiver community."
The Daughters of PF program was founded by the CPF to expand awareness of pulmonary fibrosis via grassroots events and fundraisers across the nation and generate a broader understanding of the impact the disease has on those living with PF and their families. With support from the Pulmonary Fibrosis Foundation, volunteers for the Daughters of PF program will continue its work as part of the PFF's signature programs, which includes other volunteer programs with national reach, such as the PFF Ambassador program and the PFF Support Group Leader Network.
"The Coalition has long recognized the critical role of family caregivers in the pulmonary fibrosis patient journey and the Daughters program was founded in part to educate caregivers and help raise awareness about PF," said Mishka Michon, chief executive officer of the CPF. "The Pulmonary Fibrosis Foundation shares our mission and vision for the Daughters program and will no doubt continue its legacy of helping people with pulmonary fibrosis and their family members find better ways to live with the disease."
For more information about the Daughters of Pulmonary Fibrosis program or to make a donation, please contact the PFF Patient Communication Center (PCC) at 844.TalkPFF (844.825.5733) or [email protected].
About Idiopathic Pulmonary Fibrosis
Idiopathic pulmonary fibrosis (IPF) is a condition in which, over a period of time, lung tissue becomes thickened, stiff and scarred. The development of the scar tissue is called fibrosis. As the lung tissue becomes scarred and grows thicker, the lungs lose their ability to transfer oxygen into the bloodstream. As a result, the brain and other organs don't receive enough oxygen. In some cases, doctors can determine the cause of the fibrosis, but in many cases, there is no known cause. When the cause of the fibrosis is unknown (and certain pathologic or radiographic criteria are met), the disease is called idiopathic pulmonary fibrosis or IPF. There is no cure for IPF. Presently, there are two FDA-approved treatments for IPF in the U.S.
About the Pulmonary Fibrosis Foundation
The mission of the Pulmonary Fibrosis Foundation (PFF) is to serve as the trusted resource for the pulmonary fibrosis (PF) community by raising awareness, providing disease education, advancing care and funding research. The PFF collaborates with physicians, organizations, people with PF and caregivers worldwide. The Pulmonary Fibrosis Foundation has a four-star rating from Charity Navigator and is a Better Business Bureau accredited charity. The PFF's Summit 2017: From Bench to Bedside, its fourth biennial international health care conference, will be held November 9-11, 2017. For more information visit www.pulmonaryfibrosis.org or call 844.TalkPFF (844.825.5733) or +1 312.587.9272 from outside of the U.S.
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SOURCE The Pulmonary Fibrosis Foundation