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União Contra a Psoríase
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Dia Mundial da Psoríase

IFPA - WORLD PSORIASIS DAY 2021

News provided by

IFPA

Oct 29, 2021, 06:09 ET

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ESTOCOLMO, 29 de outubro de 2021 /PRNewswire/ -- A psoríase é uma condição desfigurante e incapacitante sem cura conhecida. As placas de pele visíveis e as articulações inflamadas são sintomas físicos característicos, mas as pessoas que vivem com psoríase também enfrentam muitas dificuldades emocionais, sociais e econômicas. Está na hora de acabar com o sofrimento deles. Em 29 de outubro, Dia Mundial da Psoríase, a IFPA está lançando uma petição global para exigir melhorias.

Continue Reading
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Hundreds march for better access to treatment in Manila Philippines
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The theme of World Psoriasis Day 2021 is Uniting for Action
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Leticia Lopez speaks at a World Psoriasis Day event in Puerto Rico
IFPA launches a petition to ignite action against psoriatic disease
IFPA launches a petition to ignite action against psoriatic disease

Pelo menos 60 milhões de pessoas vivem com psoríase em todo o mundo. A maioria enfrenta barreiras no acesso ao tratamento. Quatro entre cinco pessoas sofrem discriminação devido a sintomas visíveis da pele e 12% apresentam quadros de depressão. Durante a pandemia da COVID-19, 43% observaram piora em sua doença. Mas grande parte desse sofrimento pode ser evitada.

Em 2014, todas as nações da ONU votaram por unanimidade em aprovar a resolução da psoríase (WHA 67,9), comprometendo-se a melhorar a vida de todos que vivem com psoríase. Recomendações práticas sobre como atingir esse objetivo ambicioso foram publicadas no Relatório Global da Organização Mundial da Saúde sobre a Psoríase em 2016. Em seguida, o progresso estagnou. Mais de cinco anos após esses marcos, as necessidades ainda não foram atendidas.

Como líder global na luta contra a doença psoriática, a IFPA está unindo associações de pacientes em todos os continentes para solicitar ações urgentes. No Dia Mundial da Psoríase, eles lançam uma solicitação on-line para promover mudanças. "Estamos cansados de promessas. Exigimos progresso", disse Janina Kostiukaite, Coordenadora do Dia Mundial da Psoríase. "Os países que votaram para aprovar a Resolução da Psoríase devem cumprir seus compromissos."

A convenção mundial de psoríase do IFPA destaca cinco demandas principais.

  1. Mudança de percepção da psoríase
  2. Garantir igualdade de acesso a medicamentos
  3. Parar o estigma
  4. Aprimorar o cuidado integral
  5. Preparar a força de trabalho

A IFPA tem uma meta ambiciosa de reunir 200.000 assinaturas até o final de 2021. Esses endossos serão usados para defender melhor o tratamento da psoríase em nível nacional. Frida Dunger Johnsson, diretora executiva da IFPA, disse: "O Dia Mundial da Psoríase é uma grande oportunidade de mobilizar a causa em todo o mundo. Ao nos reunirmos, podemos convocar ministros da saúde, governos e tomadores de decisões para melhorar o acesso ao tratamento. Unidos, podemos garantir que as pessoas que vivem com psoríase recebam suporte."

Expresse o seu apoio. Assine a petição do Dia Mundial da Psoríase em psoriasisday.org. Compartilhe o link com amigos e familiares. Junte-se a um movimento global pela causa da psoríase.

Foto - https://mma.prnewswire.com/media/1671690/IFPA_1.jpg
Foto - https://mma.prnewswire.com/media/1671691/IFPA_2.jpg
Foto - https://mma.prnewswire.com/media/1671692/IFPA_3.jpg
Foto - https://mma.prnewswire.com/media/1671693/IFPA_4.jpg
Logotipo - https://mma.prnewswire.com/media/1671694/IFPA_Logo.jpg

   

Contato: 

Camille Lancelot 
[email protected] 
+46739611565

FONTE IFPA

Related Links

https://ifpa-pso.com

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