News from national organization for rare disorders (nord) A wide array of domestic and global news stories; news topics include politics/government, business, technology, religion, sports/entertainment, science/nature, and health/lifestyle.

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Mar 15, 2017, 09:00 ET National Organization for Rare Disorders (NORD) Announces Honorees for 2017 Rare Impact Awards

The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 2017 Rare...


Feb 28, 2017, 07:00 ET NORD Unveils "Do Your Share for Rare," Year-long Campaign for Rare Disease Public Awareness

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare...


Feb 24, 2017, 10:03 ET National Organization for Rare Disorders Awards New Research Grants for Rare Disease Research

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and...


Dec 13, 2016, 08:00 ET Report Shows Majority of States Fall Short on Policies to Help Reduce Burden of Rare Diseases Affecting 30 Million Americans

A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according...


Dec 10, 2015, 08:00 ET FDA Awards National Organization for Rare Disorders (NORD) $250,000 Grant to Support the Development of 20 Natural History Studies for Rare Disease Research

To further the study of rare diseases, the U.S. Food and Drug Administration (FDA) has awarded a $250,000 grant to the National Organization for Rare ...


Oct 28, 2015, 08:00 ET National Organization for Rare Disorders (NORD) Publishes Guide to Promote Physician Awareness of Rare Lung Disorder

The National Organization for Rare Disorders (NORD) has published a Physician Guide to Nontuberculous Mycobacterial Lung Disease to promote awareness ...


Oct 22, 2015, 03:00 ET National Organization for Rare Disorders (NORD) Releases First-Ever State Progress Report for Rare Diseases

With patient access to health care becoming increasingly dependent upon state policies, the National Organization for Rare Disorders (NORD)® has...


Aug 24, 2015, 01:30 ET New Video from NORD Promotes Awareness of Rare Movement Disorder Neurogenic Orthostatic Hypotension

A new video released today by the National Organization for Rare Disorders (NORD) fills a gap in health care by educating patients and doctors about...


Jul 16, 2015, 01:56 ET National Organization for Rare Disorders (NORD) and University of Maryland Partner on PCORI Award to Advance Rare Disease Research

An award from the Patient-Centered Outcomes Research Institute (PCORI) will help the National Organization for Rare Disorders (NORD) and the...


Jul 15, 2015, 12:33 ET Research Grants for Rare Disease Research Available from National Organization for Rare Disorders (NORD); Deadline to Submit Abstracts or Letters of Intent is July 31

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and...


Jun 29, 2015, 09:00 ET NORD and SLS Network Community Launch Sjögren-Larsson Syndrome Registry to Accelerate Research and Treatments

The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit committed to the identification, treatment and cure of rare...


May 04, 2015, 08:36 ET Foundation for Prader-Willi Research and NORD Launch Global Prader-Willi Syndrome Registry to Accelerate Research and Cures

The Foundation for Prader-Willi Research (FPWR) and National Organization for Rare Disorders (NORD)® today launched the Global Prader-Willi Syndrome...


Apr 10, 2015, 08:30 ET National Organization for Rare Disorders (NORD)® to Honor Rare Disease Patients, Leaders and Innovators at 2015 Portraits of Courage Gala on May 19

On May 19, the National Organization for Rare Disorders (NORD)®, the nation's leading nonprofit organization dedicated to helping patients with rare...


Apr 08, 2015, 09:05 ET Cortendo AB Joins National Organization for Rare Disorders (NORD)® Corporate Council

Cortendo AB (publ) [ticker: CORT on NOTC-A], a global biopharmaceutical company focused on rare endocrine disorders and other rare diseases, and the...


Feb 18, 2015, 12:20 ET Sean Hepburn Ferrer Partners with NORD and EURORDIS to Help People Living with Rare Diseases

Actress Audrey Hepburn died of a rare type of cancer and it was the way she lived her life that inspired her son, Sean Hepburn Ferrer, to become an...


Feb 13, 2015, 02:48 ET NORD Announces #1in10 Campaign to Raise Awareness for Rare Disease Day® on February 28

The National Organization for Rare Disorders (NORD)®, a leading independent, non-profit organization committed to the identification, treatment, and...


Jun 04, 2014, 09:25 ET NORD Urges FDA To Consider Rare Disease Treatment Implications When Setting Biologics Naming Policy

In a letter submitted today to the U.S. Food and Drug Administration (FDA), the National Organization for Rare Disorders (NORD) urged Commissioner...


May 09, 2014, 12:06 ET NORD Hosts "Portraits of Courage" Celebration

The National Organization for Rare Disorders (NORD) focused a spotlight on individuals and families who display great courage as they live with rare...


Apr 04, 2014, 12:24 ET National Organization for Rare Disorders to Honor Two Members of Congress, Patient Advocates and Orphan Product Innovators

Rare disease patient advocates, two members of Congress and companies that have brought novel new therapies to patients will be honored at the...


Sep 18, 2013, 08:00 ET Deputy HHS Secretary, Investors and Entrepreneurs to Share Their Vision of Upcoming New Era in Health Care

One of the hottest trends in the pharmaceutical and biotechnology industries in recent years has been the development of orphan products or...


Sep 10, 2013, 02:16 ET Study Finds That Bill to Protect Patient Access to Medically Necessary Treatments Would Have Negligible Impact on Insurance Premiums

A bill to protect access to medically necessary treatments for patients with chronic, disabling, and life-threatening conditions would not...


Sep 05, 2013, 09:00 ET NORD Publishes New Online Physician's Guide to Gaucher Disease

The National Organization for Rare Disorders (NORD) has launched a new online Physician's Guide to Gaucher Disease to encourage early diagnosis and...


Aug 07, 2013, 11:08 ET Connecticut Boy and NORD Alert Physicians to Rare Seizure Disorder

A 14-year-old Connecticut boy has joined the National Organization for Rare Disorders (NORD) in alerting pediatricians and other physicians to a rare ...


Apr 05, 2013, 10:47 ET NORD To Honor Rare Disease Heroes At 30th Anniversary Celebration

Honoring heroes of the past and innovators of the future, the National Organization for Rare Disorders (NORD) will host a 30th Anniversary...


Feb 26, 2013, 01:16 ET As Rare Disease Day Approaches, Patient Advocates Celebrate 30 Years of Collaboration But Worry About Looming Budget Cuts

On Thursday (Feb. 28), millions of people around the world will be observing Rare Disease Day and this annual observance has special significance for ...