News from national organization for rare disorders (nord) A wide array of domestic and global news stories; news topics include politics/government, business, technology, religion, sports/entertainment, science/nature, and health/lifestyle.

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Jun 22, 2020, 10:15 ET NORD's Jayne Holtzer Rare Disease Research Grants Program Continues Its Commitment to Rare Disease Research with New Funding Opportunities, Invites Submission of Proposals by August 25

The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing over 25 million Americans living...


May 21, 2020, 12:00 ET NORD Supports Rare Disease Nonprofits Impacted by COVID-19 with New Rapid Response Leadership Series

The National Organization for Rare Disorders (NORD®) today launched the COVID-19 Rapid Response Leadership Series, a program providing resources to...


May 19, 2020, 12:19 ET NORD Awards Eleven New Grants in Eight Disease States for Rare Disease Research

The National Organization for Rare Disorders (NORD®) has announced new awards through its Rare Disease Research Grant Program, which provides funding ...


May 12, 2020, 11:30 ET In Support of Rare Disease Patients Impacted by COVID-19, NORD Launches Premium and Limited Medical Relief Program

United with more than 25 million Americans living with rare diseases, the National Organization for Rare Disorders (NORD®) today launched its...


Apr 15, 2020, 11:15 ET NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19

At this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, the National Organization for...


Mar 30, 2020, 10:25 ET NORD/ EURORDIS-Rare Diseases Europe Joint Statement on COVID-19 and Orphan Drug Legislation

The National Organization for Rare Disorders (NORD) and EURORDIS-Rare Diseases Europe share the global concern that diagnostics, therapeutics and...


Mar 24, 2020, 15:45 ET NORD Welcomes Vice President of Information Technology Prashant Goel, Who Joins to Lead a Team of IT Innovators in Rare Disease

The National Organization for Rare Disorders (NORD®) is pleased to welcome Prashant Goel as the new Vice President of Information Technology, based...


Feb 28, 2020, 09:30 ET National Organization for Rare Disorders Launches Natural History Study for Undiagnosed Rare Diseases

The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing over 25 million Americans with rare ...


Feb 11, 2020, 11:45 ET NORD Introduces This Year's Rare Disease-Fighting Super Group: The 2020 Rare Impact Award Honorees!

The National Organization for Rare Disorders (NORD®) has announced this year's roster of rare disease change-makers, the 2020 Rare Impact Award...


Jan 30, 2020, 15:30 ET NORD Report Shows Key Policy Improvements Were Achieved by States in 2019 But More Progress Is Needed to Support Americans Living with Rare Diseases

According to the 5th Edition of the "State of the States Report," released today by the National Organization for Rare Disorders (NORD®) and its Rare ...


Jan 23, 2020, 16:25 ET NORD Joins with Pyruvate Kinase Deficiency Community to Publish Historic "Voice of the Patient" Report

The National Organization for Rare Disorders (NORD)®, the Foundation for Rare Blood Diseases (SZB) and the pyruvate kinase deficiency community...


Jan 16, 2020, 13:45 ET NORD Issues a Rare Decree: Show Your Stripes™ for Rare Disease Day®

The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing over 25 million Americans living...


Dec 20, 2019, 12:03 ET NORD Announces Two New Board Members

The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing over 25 million Americans with rare ...


Oct 23, 2019, 15:30 ET 2019 NORD Summit Breaks Records with Largest Attendance Ever!

Earlier this week, the National Organization for Rare DisordersⓇ (NORD) broke previous records with its 2019 Rare Diseases & Orphan Products...


Sep 19, 2019, 18:25 ET Innovative Data and Analytics Platform to Accelerate Drug Development for Rare Diseases

The Critical Path Institute (C-Path) and the National Organization for Rare Disorders® (NORD) launched the Rare Disease Cures Accelerator-Data and...


Aug 29, 2019, 10:30 ET Mark Your Calendars - October 1 is Rare Cancer Day!

The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD...


Aug 07, 2019, 10:19 ET Funded By FDA, C-Path And NORD To Launch Rare Disease Data Analytics Platform

The Critical Path Institute (C-Path) and the National Organization for Rare Disorders® (NORD) will host a meeting on Tuesday, September 17 in...


Jul 31, 2019, 13:00 ET 2019 NORD Rare Summit to Feature Caregivers Who Have Moved from Inspiration to Action

The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with...


Jun 25, 2019, 13:15 ET NORD Awards Ten New Grants in Eight Disease States for Rare Disease Research

The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living...


Apr 30, 2019, 13:42 ET NORD Research Grant Program Celebrates 30th Anniversary, Funding Opportunities Announced

The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living...


Mar 12, 2019, 11:15 ET National Organization for Rare Disorders (NORD)Ⓡ Announces 2019 Rare Impact Award Honorees

The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for...


Jan 16, 2019, 13:30 ET NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living...


Dec 18, 2018, 16:10 ET New Study Finds Orphan Drug Exclusivity Working As Intended, On-Market Orphan Drug Prices Rise Slower than Common Drugs

A new report commissioned by the National Organization for Rare Disorders (NORD) and published today by the IQVIA Institute, demonstrates that the...


Dec 03, 2018, 14:33 ET National Gathering of the Rare Disease Community and Health Professionals Launched with 2019 Living Rare, Living Stronger | NORD Patient & Family Forum

The National Organization for Rare Disorders (NORD) has announced a meeting for patients, caregivers and the medical community. The 2019 Living Rare, ...


Oct 18, 2018, 09:37 ET Updated Study Analyzes Use and Cost of Orphan Drugs

Despite a record-breaking number of new approvals, orphan drugs remain a nominal part of overall drug spending, accounting for only 9.6% of total...