News from tuberous sclerosis alliance A wide array of domestic and global news stories; news topics include politics/government, business, technology, religion, sports/entertainment, science/nature, and health/lifestyle.

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06:00 ET Bcureful and Tuberous Sclerosis Alliance Announce Plans to Combine Efforts

Today, Bcureful and the Tuberous Sclerosis Alliance (TS Alliance) announced plans to formally combine efforts, specifically by establishing the...


Sep 17, 2019, 11:39 ET Tuberous Sclerosis Alliance to Mark 45th Anniversary at Gala in New York City

On Thursday, October 3, the Tuberous Sclerosis Alliance (TS Alliance) will hold its 45th Anniversary Gala at The Edison Ballroom in New York City....


Apr 30, 2019, 05:00 ET TSC Global Awareness Day Scheduled for May 15

On May 15, the Tuberous Sclerosis Alliance (TS Alliance) will join tuberous sclerosis complex (TSC) organizations around the world to observe the...


Mar 22, 2019, 05:00 ET 18th Annual Comedy for a Cure® Scheduled for April 7, 2019

On Sunday, April 7, 2019, the Tuberous Sclerosis Alliance (TS Alliance) will present its 18th Annual Comedy for a Cure®, which raises funds to...


Nov 29, 2018, 11:27 ET Tuberous Sclerosis Alliance Preclinical Consortium Announces New Staff and Company Members

Today, the Tuberous Sclerosis Alliance (TS Alliance) announced a new staff member to drive its tuberous sclerosis complex (TSC) Preclinical...


May 15, 2018, 06:00 ET Tuberous Sclerosis Alliance Announces New Global Partnerships in India and Thailand

In celebration of Tuberous Sclerosis Complex (TSC) Global Awareness Day on May 15, the Tuberous Sclerosis Alliance (TS Alliance) today announced its...


Apr 10, 2018, 09:43 ET Tuberous Sclerosis Alliance salutes FDA approval of Afinitor® DISPERZ (everolimus) as the first adjunctive treatment approved in US for patients aged 2 years and older with tuberous sclerosis complex (TSC)-associated partial-onset seizures

Today, the Tuberous Sclerosis Alliance (TS Alliance) is pleased to share that the U.S. Food and Drug Administration has approved the drug Afinitor,...


Apr 03, 2018, 02:39 ET 17th Annual Comedy for a Cure® Scheduled for April 8, 2018

On Sunday, April 8, 2018, the Tuberous Sclerosis Alliance (TS Alliance) will present its 17th Annual Comedy for a Cure, which raises funds to support ...


Jan 04, 2018, 06:30 ET Tuberous Sclerosis Alliance Announces New Global Partnership in Hungary

Today, the Tuberous Sclerosis Alliance (TS Alliance) announced its newest Global Alliance, the Hungarian Foundation for Tuberous Sclerosis. This...


Nov 14, 2017, 23:01 ET 2017 Infantile Spasms Hope Award and Heroes Award Recipients Announced

In advance of Infantile Spasms Awareness Week 2017, held annually December 1-7, a coalition of organizations known as the Infantile Spasms Action...


Oct 27, 2017, 12:53 ET Tuberous Sclerosis Alliance Submits "Voice of the Patient" Report To FDA

On October 26, the Tuberous Sclerosis Alliance (TS Alliance) formally submitted its comprehensive "Voice of the Patient" report to the U.S. Food and...


May 15, 2017, 00:01 ET Tuberous Sclerosis Alliance Announces New Global Partnership in Mexico

In celebration of Tuberous Sclerosis Complex (TSC) Global Awareness Day, the Tuberous Sclerosis Alliance (TS Alliance) today announced its newest...


May 01, 2017, 00:01 ET TSC Global Awareness Day Scheduled for May 15

On May 15, the Tuberous Sclerosis Alliance (TS Alliance) will join tuberous sclerosis complex (TSC) organizations around the world to observe the...


Mar 09, 2017, 23:01 ET 16th Annual Comedy for a Cure® Scheduled for April 2, 2017

On Sunday, April 2, 2017, the Tuberous Sclerosis Alliance (TS Alliance) will present its 16th Annual Comedy for a Cure, which raises funds to support ...


Feb 24, 2017, 06:56 ET "Sound Bites" Event to Raise Funds for Tuberous Sclerosis Alliance

On Wednesday, March 1, the Tuberous Sclerosis Alliance (TS Alliance) will present Sound Bites, An Evening of Food, Wine and Music at the National...


Nov 30, 2016, 12:01 ET Infantile Spasms Awareness Week Scheduled For December 1-7

From December 1 to 7, 2016, a coalition of organizations will mark Infantile Spasms Awareness Week (ISAW). The goal of ISAW is to increase awareness...


Nov 14, 2016, 02:29 ET 2016 Infantile Spasms Hope Award and Heroes Award Recipients Announced

In advance of Infantile Spasms Awareness Week (ISAW) 2016, held annually December 1-7, a coalition of organizations has announced recipients of both...


Sep 06, 2016, 12:01 ET TS Alliance Salutes Missouri State Legislature for Providing Funding to Expand Tuberous Sclerosis Center

The Tuberous Sclerosis Alliance (TS Alliance) salutes the Missouri State Legislature, and in particular Senator Eric Schmitt, for appropriating $1.25 ...


Aug 11, 2016, 12:23 ET Engles Pledge $1.5 Million to Create New Tuberous Sclerosis Complex Research Fund

Today, the Tuberous Sclerosis Alliance (TS Alliance) announced the creation of the Engles Collaborative Research Fund, following a pledge of $1.5...


May 11, 2016, 12:01 ET LIDS Foundation Named as First National Title Sponsor of Step Forward to Cure TSC®

The Tuberous Sclerosis Alliance (TS Alliance) recently announced LIDS Foundation as the first-ever national title sponsor of its Step Forward to Cure ...


May 01, 2016, 07:00 ET TSC Global Awareness Day Scheduled for May 15

On May 15, the Tuberous Sclerosis Alliance (TS Alliance) will join tuberous sclerosis complex (TSC) organizations around the world to observe the...


May 05, 2015, 06:47 ET TSC Global Awareness Day Scheduled for May 15

On May 15, the Tuberous Sclerosis Alliance (TS Alliance) will join tuberous sclerosis complex (TSC) organizations around the world to observe the...


Apr 03, 2015, 12:01 ET Tuberous Sclerosis Alliance to Present 14th Annual Comedy for a Cure®

On Sunday, April 12, the Tuberous Sclerosis Alliance (TS Alliance) will present its 14th Annual Comedy for a Cure® at The Globe Theater in Universal...


Mar 13, 2015, 01:42 ET Tuberous Sclerosis Alliance to Honor Helena Foulkes of CVS Health

The Tuberous Sclerosis Alliance (TS Alliance) will honor Helena Foulkes, President, CVS/pharmacy and Executive Vice President, CVS Health, at the...


Feb 23, 2015, 12:50 ET Tuberous Sclerosis Alliance Congratulates Julianne Moore for Best Actress Academy Award®

The Tuberous Sclerosis Alliance (TS Alliance) congratulates its long-time supporter and celebrity spokesperson, Julianne Moore, for winning "Best...