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Dec 08, 2025, 08:30 ET Dominari Expands Strategic Leadership with Appointment of Ambassador Jamie McCourt to Advisory Board
Globally recognized diplomat, executive and entrepreneur Ambassador Jamie McCourt Joins Advisory BoardAmbassador McCourt brings a rare combination of global diplomacy, executive leadership and entrepreneurial vision. She served as United States Ambassador to the French Republic and
More news about: Dominari Holdings Inc.
Dec 08, 2025, 08:00 ET Orsini and Dos Rx partner to support international medical travel facilitation
powerful tools, which will combine to ensure rare disease patients traveling to the U.S. receive the care they need."About OrsiniProviding patients with comprehensive and compassionate care since 1987, Orsini is a leader in rare diseases and gene therapies. Orsini partners
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Dec 08, 2025, 08:00 ET Ramaco Resources Announces Fourth Quarter Class B Stock Dividend Details
metallurgical coal mining complexes in Central Appalachia and one coal mine and rare earth development near Sheridan, Wyoming in the initial stages of production.In 2023, the Company announced that a major deposit of primary magnetic rare earths and critical minerals was discovered at its mine near Sheridan,
More news about: Ramaco Resources, Inc.
Dec 08, 2025, 08:00 ET Pierre Fabre Pharmaceuticals Announces Updated Phase 3 Tabelecleucel Data at American Society of Hematology Meeting in Epstein-Barr Virus Positive Post-Transplant Lymphoproliferative Disease (EBV+ PTLD)
innovative cell therapy. These patients have undergone a difficult journey to receive a life-saving transplant only to be diagnosed with this ultra rare form of cancer and they deserve an effective treatment option following failure of standard-of-care therapy," said Adriana Herrera, Chief Executive
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Dec 08, 2025, 08:00 ET ZS acquires Torrent Consulting to fuel Salesforce's healthcare, life sciences AI solutions
quality work for customers. This has earned them industry awards and '6x' Inc. 5000 over the past decade."Joining forces with ZS is an exciting and rare opportunity for Torrent. We've always been passionate about helping healthcare and life sciences organizations harness the power of Salesforce to transform
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Dec 08, 2025, 07:30 ET Recordati Rare Diseases Showcases Real-World Evidence Studies That Advance Understanding of Castleman Disease (CD) at the American Society of Hematology (ASH) Annual Meeting
employees.Recordati Rare Diseases' mission is to reduce the impact of extremely rare and devastating diseases by providing urgently needed therapies. We work side-by-side with rare disease communities to increase awareness, improve diagnosis, and expand availability of treatments for people with rare diseases.Recordati
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Dec 08, 2025, 07:00 ET UCB presents positive results from GEMZ phase 3 study at AES showing fenfluramine significantly reduced countable motor seizure frequency in CDKL5 deficiency disorder
share these important results with the medical community at AES, especially given the significant unmet need in CDD. Families affected by this ultra-rare condition face immense daily challenges with frequent, treatment-resistant seizures that are profoundly disruptive to daily life. We look forward to
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Dec 08, 2025, 06:00 ET Oppenheimer & Co. Inc. Strengthens Equities and Biotech Research Teams with Addition of Kostas Biliouris, Ph.D.
biochemical engineering and his scientific work was published in collaboration with Biogen, Ionis, Merck, Novartis, and the FDA."Kostas brings a rare combination of scientific depth, industry experience, and securities analysis that fits directly into our approach to biotech equity research," Bird
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Dec 08, 2025, 05:14 ET Servier's Voranigo® (vorasidenib) Receives Prix Galien Awards Across Multiple Regions
Voranigo® has been awarded the Prix Galien USA, the Prix Galien Poland and the Prix Galien Bridges Awards for Best Product for Orphan/Rare Diseases. These awards across several geographies recognize the progress represented by Voranigo® for patients living with glioma.
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Dec 08, 2025, 05:05 ET Servier's Voranigo® (vorasidenib) Receives Prix Galien Awards Across Multiple Regions
Voranigo® has been awarded the Prix Galien USA, the Prix Galien Poland and the Prix Galien Bridges Awards for Best Product for Orphan/Rare Diseases. These awards across several geographies recognize the progress represented by Voranigo® for patients living with glioma.
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Dec 08, 2025, 01:36 ET GC Biopharma Ships First Doses of World's First Recombinant Anthrax Vaccine, 'BARYTHRAX inj.'
R&D capabilities in engineering of proteins, mRNAs, and lipid nanoparticle (LNP) drug delivery platform to develop therapeutics for the field of rare disease as well as I&I (Immunology & Inflammation). To learn more about the company, visit
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Dec 08, 2025, 01:32 ET UCB presents positive results from GEMZ phase 3 study at AES showing fenfluramine significantly reduces countable motor seizure frequency in CDKL5 Deficiency Disorder
share these important results with the medical community at AES, especially given the significant unmet need in CDD. Families affected by this ultra-rare condition face immense daily challenges with frequent, treatment-resistant seizures that are profoundly disruptive to daily life. These trial results
More news about: UCB
Dec 08, 2025, 01:28 ET UCB presents positive results from GEMZ phase 3 study at AES showing fenfluramine significantly reduces countable motor seizure frequency in CDKL5 Deficiency Disorder
share these important results with the medical community at AES, especially given the significant unmet need in CDD. Families affected by this ultra-rare condition face immense daily challenges with frequent, treatment-resistant seizures that are profoundly disruptive to daily life. These trial results
More news about: UCB
Dec 07, 2025, 20:03 ET Hydron Energy Demonstrates Low-Cost Production of Xenon with Negative Carbon Footprint for Satellite Propulsion
contrast to conventional cryogenic distillation methods, which are both energy and carbon intensive."Our breakthrough technology will disrupt the rare gas market, offering Xenon and Krypton at a fraction of today's cost," said Hydron Energy CEO Soheil Khiavi. "The market is set to double in size in
More news about: Hydron Energy Inc.
Dec 07, 2025, 12:01 ET Data Published in the New England Journal of Medicine Confirm the Long-term Durability and Safety of HEMGENIX® (etranacogene dezaparvovec-drlb) Over Five Years
clinical database lock for the study. No inhibitors to factor IX were reported.About Hemophilia B Hemophilia B is a life-threatening rare disease caused by a mutation on the F9 gene, resulting in low levels of functional clotting factor IX. People with the condition are particularly vulnerable
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Dec 07, 2025, 04:45 ET Vuse Ultra und McLaren Racing feiern F1-Triumph mit exklusiver Limited Edition: Innovation trifft Motorsport-Exzellenz
2025, den Höhepunkt einer Partnerschaft, die Technologie und Stil auf einzigartige Weise vereint – getreu dem gemeinsamen Credo: „Extraordinary is rare".
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Dec 06, 2025, 15:40 ET Zenocutuzumab-zbco (BIZENGRI®) Shows Durable Efficacy in Patients with Treatment-Naïve NRG1+NSCLC: Updated eNRGy Trial Results Presented at IASLC-ASCO NACLC
University. "Early and durable responses, coupled with a favorable safety profile are encouraging and highlight the importance of targeted therapy in this rare molecular subset.""Consistent with other therapies targeting key oncogenic drivers, early intervention can lead to better outcomes — and we see
More news about: Partner Therapeutics, Inc.
Dec 06, 2025, 12:28 ET Lundbeck announces positive Phase 2 long-term data for bexicaserin in rare childhood-onset epilepsies, at American Epilepsy Society (AES) Annual Meeting
initiation with bexicaserin in patients with Developmental and Epileptic Encephalopathies (DEEs)1DEEs are a group of devastating, rare epilepsies characterized by unpredictable, drug-resistant seizures combined with developmental and intellectual disabilities2 Durable
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Dec 06, 2025, 12:25 ET Lundbeck announces positive Phase 2 long-term data for bexicaserin in rare childhood-onset epilepsies, at American Epilepsy Society (AES) Annual Meeting
initiation with bexicaserin in patients with Developmental and Epileptic Encephalopathies (DEEs)1DEEs are a group of devastating, rare epilepsies characterized by unpredictable, drug-resistant seizures combined with developmental and intellectual disabilities2 Durable
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Dec 06, 2025, 07:15 ET Studies Highlight Innovative Approaches to Improving Patient Care and Outcomes
on average, than white patients and, even when treated in clinical trials, have significantly worse outcomes than white patients." AML is a rare, fast-growing cancer that starts in the bone marrow, the soft tissue inside bones where blood cells form. Early blood-forming cells change (mutate) and
More news about: American Society of Hematology
Dec 06, 2025, 07:03 ET Move Over Chanel and Patek: 18K Gold Edition of 'Twas the Night Before Christmas Just Entered the Luxury Collector Market
edition for generations. Nothing is accidental — every choice is warm, intentional, and rooted in traditions of artistry that are becoming increasingly rare.At TWAS, the philosophy is simple: we create more than luxury — we awaken wonder. Each heirloom is designed to bring people back to the
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Dec 06, 2025, 07:00 ET Research Reveals Avenues for Informing and Improving Sickle Cell Care
pediatric hematology/oncology at Sarah Cannon Research Institute at TriStar Centennial Children's Hospital in Nashville, Tennessee. "A 100% success rate is rare in anything that we do."Exa-cel is approved for patients 12 years and older who have transfusion-dependent beta-thalassemia or sickle cell disease
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Dec 05, 2025, 13:14 ET Clinical Education Alliance Becomes Decera Clinical, Delivering Education, Insights, and Communications
filtering aggressively," said Leo Tarkovsky, Chief Executive Officer of Decera Clinical. "They need clarity from sources they trust. We've built something rare: a Scientific Activation engine fueled by rigorous content, powered by decades-long relationships with HCPs, and delivered through channels they actually
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Dec 05, 2025, 12:46 ET Sobi to Showcase Scientific advances and Commitment to Haematology at ASH 2025
Vonjo is also being investigated for other rare hematologic conditions, including VEXAS syndrome.Sobi®Sobi is a global biopharma company unlocking the potential of breakthrough innovations, transforming everyday life for people living with rare diseases. Sobi has approximately 1,900
More news about: Swedish Orphan Biovitrum AB
Dec 05, 2025, 11:48 ET Monotype Gives Serene Typographic Expression to the Pantone Color of the Year 2026 PANTONE 11-4201 Cloud Dancer
digitized in the 1990s by independent type designer Jason Castle of CastleType, the typeface was based on lettering by designer Gustav Jensen, featured in a rare 1933 alphabet sample book.At the Pantone Color of the Year 2026 launch event on December 4 in NYC, a neon installation set in Jensen Arabique
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