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      • People & Culture

      Imagine Dragons' Dan Reynolds Gets Vocal About Living with Ankylosing Spondylitis in New Interactive Talk Show

      "This AS Life Live!," hosted by Reynolds, reveals the true impact of Ankylosing Spondylitis (AS) and the inspiring stories of those living with the condition


      News provided by

      Spondylitis Association of America

      Nov 15, 2016, 04:15 ET

      Share this article

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      VAN NUYS, Calif., Nov. 15, 2016 /PRNewswire/ -- Dan Reynolds, lead singer of the Grammy® award-winning rock band Imagine Dragons, is partnering with the Spondylitis Association of America and Novartis Pharmaceuticals Corporation to launch This AS Life Live!, the first interactive talk show for patients with AS by patients with AS. This AS Life Live! aims to increase awareness of AS, the impact it can have on people and the importance of appropriate disease management. 

      "When I started to have symptoms of AS, my band was just beginning to take off and I was newly married. From the outside, everything was going great for me, but what many people didn't know was that I was often in severe pain that left me unable to sleep at night or move around on stage – something that was very unlike me," said Reynolds. "Because it doesn't exhibit any external signs or symptoms, AS truly is an invisible disease. It nearly took away many of my life's biggest joys, like holding my child and performing live on stage."

      AS is a chronic inflammatory condition that can lead to severe pain and discomfort.1 Reynolds was diagnosed with AS at age 20 when a family member recognized his symptoms and advised him to see a doctor. He has been living with AS and managing his symptoms for nearly ten years, and is the third member of his family to be diagnosed with the disease.

      "I am stoked to be a part of this new series, and help bring the realities of the AS patient experience to life. The challenges I have faced are what drive my passion to discuss my experiences and be a part of the larger AS patient community," said Reynolds. "I hope that This AS Life Live! will provide much-needed information and support to patients and their caregivers."

      Each episode of the series will feature Reynolds interviewing a different patient, focusing on a unique aspect of their daily life with AS, such as exercise, relationships, the workplace and physician visits. Episodes of This AS Life Live! will air on ThisASLife.com – a vibrant, online global community that provides a supportive environment for patients. In addition to the episodes, the website offers:

      • Disease information and symptom management tips
      • Tips on improving doctor/patient communication
      • Lifestyle management tips written by AS patients and expert rheumatologists from around the world to help more patients stay healthy with their disease

      Episodes will also be available on StopAS.org.

      "We are excited to partner with Novartis on This AS Life Live! to drive awareness and encourage a stronger patient-physician dialogue," said Richard Howard, Associate Executive Director of the Spondylitis Association of America and an AS patient. "It is critical that people who live with or are at risk of developing AS are educated and empowered to speak with their doctors about how to effectively manage the disease. Our hope is that This AS Life Live! will inspire more conversations about this often overlooked and misdiagnosed condition."

      In the United States, more than one million people are impacted by the disease.2,3 AS usually begins in patients between the ages of 20 and 30, but can occur as late as 40 to 50.4 In the most advanced AS cases, the inflammation of the spinal joints causes the spine to fuse in a fixed, immobile position, sometimes creating a stooped posture.1

      "Those living with the painful, but often outwardly invisible signs and symptoms of AS need to know that they are not alone in their fight to best manage their disease," said Fabrice Chouraqui, U.S. President at Novartis Pharmaceuticals Corporation. "At Novartis, we are honored to work with the Spondylitis Association of America and Dan Reynolds on This AS Life Live! to encourage the community to share their stories and offer the needed support and resources to bring awareness to this hidden disease."

      To learn more about This AS Life Live! and AS, please visit ThisASLife.com or StopAS.org.

      About Dan Reynolds
      Dan Reynolds is the lead singer for Grammy® award-winning rock band Imagine Dragons, who have achieved international success with hits such as "It's Time" and "Radioactive." Reynolds is also a recipient of the Songwriters Hall of Fame Hal David Starlight Award.

      Imagine Dragons' debut album Night Visions debuted at No. 2 on the Billboard Top 200 Albums chart, selling nearly four million copies worldwide, and became the No. 1 album on Spotify Worldwide for 2013. Night Visions' second single, the 9x-platinum "Radioactive," hit No. 1 on the Billboard Rock chart and earned the band a 2014 Grammy® for "Best Rock Performance." The band has sold more than 24 million tracks worldwide. Their 2015 release, Smoke + Mirrors, debuted at No. 1 on the Billboard Top 200 album chart.

      About the Spondylitis Association of America

      The Spondylitis Association of America (SAA) is the only nonprofit organization in the U.S. dedicating all of its resources to improving the lives of people with ankylosing spondylitis and related diseases. Established in 1983, SAA is committed to increasing awareness of spondylitis, providing information and support to patients and their families, and working to prevent, and ultimately, uncover a cure for the disease.

      SAA produces the most comprehensive library of spondylitis resources available in the U.S. – including books, DVDs, CDs, brochures and other publications; an interactive website – spondylitis.org; a quarterly, advertising-free news magazine, and a network of nationwide Educational Support Groups to educate and support people living with this chronic illness.

      At the forefront of every major milestone achieved in spondylitis education, research and advocacy in the U.S., you will find the Spondylitis Association of America.

      References

      1.

      Spondylitis Association of America website. Ankylosing spondylitis. Available at https://www.spondylitis.org/Learn-About-Spondyloarthritis/Ankylosing-Spondylitis. Accessed October 10, 2016.

      2.

      Assessment of SpondyloArthritis International Society. Prevalence of ankylosing spondylitis (AS) and spondyloarthritis (SpA) vs. rheumatoid arthritis (RA). Available at http://slides.asas-group.org/app/slides/search?q=&c=1&k=ALL. Accessed November 9, 2016.

      3.

      United Stated Census Bureau. U.S. and world population clock. Available at https://www.census.gov/popclock/. Accessed on November 9, 2016.

      4.

      National Institute of Arthritis and Musculoskeletal and Skin Diseases. What Is Ankylosing Spondylitis? Fast Facts: An Easy-to-Read Series of Publications for the Public. http://www.niams.nih.gov/health_info/ankylosing_spondylitis/ankylosing_spondylitis_ff.asp. Updated November 2014, Accessed November 3, 2016.

      SOURCE Spondylitis Association of America

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