Conference Educates Families and Professionals about Obesity-Related Genetic Disorder Prader-Willi Syndrome

Nov 03, 2015, 18:01 ET from Prader-Willi California Foundation

REDONDO BEACH, Calif., Nov. 3, 2015 /PRNewswire-USNewswire/ -- Prader-Willi California Foundation will host its annual state conference to educate families raising a child or adult diagnosed with Prader-Willi syndrome, a rare and extraordinarily complex genetic disorder. Professionals welcome. The conference will be held on Saturday, November 14 at the Crowne Plaza, LAX.

Symptoms of Prader-Willi syndrome include short stature, weak muscles, cognitive and learning challenges, delayed developmental milestones, obsessive compulsive tendencies, incomplete sexual development, and its hallmark symptoms: an insatiable drive to eat and behavioral symptoms similar to and often more severe than Autism.

No known medication controls or even reduces the insatiable appetite. Undiagnosed and unmanaged, PWS causes morbid obesity and premature death. But there are management strategies that save lives and improve the quality of life of all who are impacted by this complex medical disorder. A diagnosis of PWS does not have to mean morbid obesity.

This year's conference focuses on the relationship between movement and learning. Experts will present on such topics Brain Gym® strategies, physical therapy interventions, exercise and play activities for persons with PWS of every age, and an overview of current PWS research. Parents and professionals will attend breakout learning and share sessions focusing on such topics as early intervention, school age education, residential settings, and meal planning strategies. The simultaneous Youth and Adult Program provides persons with PWS and their siblings a fun-filled day of circus-themed activities including carnival games, a photo booth, therapy dog visit, yoga and stretching, arts and crafts, and a dance party.    

WHAT: Prader-Willi Syndrome Annual State Conference

WHEN: Saturday, November 14, 2015 - 9:00 am to 5:00 pm

WHERE: Crowne Plaza Los Angeles International Airport, 5985 W. Century Boulevard, Los Angeles, CA  90045

COST:  PWCF Members $70 / $100 couple; Non-Members $85

To learn more about Prader-Willi syndrome or to register for the conference visit www.pwcf.org or contact the PWCF Office (310) 372-5053 / info@pwcf.org .

Prader-Willi California Foundation
Contact: Lisa Graziano, Executive Director
310-372-5053
info@pwcf.org

 

SOURCE Prader-Willi California Foundation



RELATED LINKS

http://www.PWCF.org