ELKHORN, Wis., Feb. 19, 2015 /PRNewswire/ -- On March 5, 2015, CVSA USA/Canada will be joining forces with CVSA Organizations throughout the world to promote awareness of Cyclic Vomiting Syndrome (CVS). CVS is a debilitating condition characterized by episodes of severe nausea and persistent vomiting interspersed with periods of wellness. Estimates are that it affects about 2 percent of school-aged children and many adults who are mis or undiagnosed. Treatment often requires hospitalization, IV fluids and sedation. At its worst the disease can result in serious complications, like tearing of the esophagus and even death. CVS affects people young and old, all over the world and it prevents them from enjoying normal and full lives.
Canada, Denmark, Germany, Ireland, Italy, Japan, The Netherlands, Spain, United Kingdom and the USA plus 20 other countries are joining together to make sure that there's a global, cohesive effort to make this condition understood. By working together with a cohesive, worldwide message, we can make sure people know this a more common syndrome than they might think, and that by sharing information and resources, we reach both sufferers and those who may still be undiagnosed.
"I helped found the CVSA non-profit association in the US when my own daughter was diagnosed 22 years ago," said Kathleen Adams, Board of Directors of CVSA, USA. "We've grown from a handful of people to hundreds of members and we can now extend our reach even further with our international efforts."
"By working together across countries, we reinforce that CVS is a global issue affecting the lives of kids and adults alike. Education is key, said Robin Dover, President of CVSA, UK. "As we raise awareness of CVS and the associated symptoms, we are always amazed by how many people have a personal connection to someone who fits the description of a CVS sufferer. Together we provide hope."
Some of the resources we have made available to share with media outlets include:
- A concise description of what CVS is and what its symptoms are: http://cvsaonline.org/what-is-cvs/.
- Interviews with CVS staff and Board of Directors to gain a more personal look at CVS, condition, research and treatments.
- Copies of the Code V newsletters (Code V is the word hospitals use to announce instances of vomiting incidentally)
- Free downloadable eBook on iOS made available through CVSA, UK: http://www.pm360online.com/6th-digital-health-summit-shows-the-future-of-healthcare/
- Stories of teen sufferers: http://cvsaonline.org/blog/
- Tools including hospital hints, how to navigate school and job issues and medication can be found on the website at http://cvsaonline.org
- To see a short film made by CVS sufferers and other media links click on this link http://cvsaonline.org/cvs-media-links/
For More Information, materials or to set up interviews contact
About CVSAOnline US
CVSA, a not for profit institution, was founded in 1993 when a group of parents and patients who had been dealing with CVS without a diagnosis or hope of treatment banned together. We hold annual conferences, support medical research and dissemination of scientific research, hold fundraisers, maintain a medical advisory board and operate a website and social media sites to offer hope and assistance to those with Cyclic Vomiting Syndrome and their families.
SOURCE CVSAOnline US