"Most pediatricians will see only one or two IS cases during their careers. Couple that with the potential for severe developmental delay in infants left untreated, and the need for providers, caregivers, and the public to be aware of the urgency of IS diagnosis and treatment becomes a critical priority in the child neurology community," stated Amy Brin Miller, Executive Director of the Child Neurology Foundation (CNF).
ISAW 2016 includes social media campaigns directed to the general public and parents, national and local media interviews, physician awareness projects, and activities at the American Epilepsy Society annual meeting in Houston.
2016 ISAW partner organizations include the American Academy of Pediatrics, Association of Child Neurology Nurses, American College of Emergency Physicians, American Epilepsy Society, Child Neurology Foundation, Child Neurology Society, Citizens United for Research in Epilepsy (CURE), Danny Did Foundation, Global Genes, Lennox-Gastaut Syndrome (LGS) Foundation, RARE Science, SeizureTracker.com, and Tuberous Sclerosis Alliance.
In early October, CNF presented Dr. Stephen B. Coker, a neurologist at Central DuPage Hospital, Lurie Children's Northwestern Medicine, in Winfield, IL, with the 2016 Infantile Spasms Heroes Award. In addition, the Tuberous Sclerosis Alliance recognized Ellen Wehrman of Mount Pleasant, MI with the 2016 Infantile Spasms Hope Award.
To join the ISAW 2016 campaign, use #ISAW2016 and visit www.isweek.org.
Infantile Spasms Awareness Week is supported by charitable contributions and educational grants from Lundbeck, Mallinckrodt, and Novartis.
CONTACT: Jaye Isham, 301-562-9890, email@example.com
To view the original version on PR Newswire, visit:http://www.prnewswire.com/news-releases/infantile-spasms-awareness-week-scheduled-for-december-1-7-300365397.html
SOURCE Tuberous Sclerosis Alliance