NEW YORK, Aug. 23, 2017 /PRNewswire/ -- There is an overwhelming and fundamental need for greater physician education and public awareness for Primary Immunodeficiency. In response, the Jeffrey Modell Foundation's (JMF) pledge to help affirm an absolute commitment to clinical and basic research in order to better understand and treat this condition, has materialized in the opening of 11 new Diagnostic and Research Centers and Networks across five continents; Africa, Australia, Asia, Europe, and North America.
Primary Immunodeficiency (PI) is a genetic defect of the immune system that affects at least 1 in 500 people, mostly children, and is chronic, serious and often fatal, if not diagnosed and treated early.
The Jeffrey Modell Centers Network (JMCN) was created to meet the rising need for referrals and specialized centers for the increasing number of patients identified with PI. The JMCN provides the infrastructure appropriate for referral, earliest possible diagnosis, and appropriate treatments. It also serves as a global resource for the dissemination of information and education into the diagnosis and treatment of PI.
JMCN investigators gain access to an international database and are able to connect with over 780 physicians and researchers from over 80 countries, in order to coordinate studies. The ever expanding JMCN is once again adding new Diagnostic and Research Centers and Networks across several countries around the world.
Two new Jeffrey Modell Diagnostic and Research Centers have opened in Europe and North America.
- Barcelona, Spain at Vall d'Hebron Hospital, marking the first Jeffrey Modell Center located in Spain.
- North Carolina, United States at Duke University Medical Center
Two new Networks have been established in Melbourne and North Africa.
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The Jeffrey Modell Foundation will also be constructing the beginning of an Asian Network. Starting with the University of Hong Kong, the network will expand with additional institutions throughout Asia.
These 11 new Network locations further drives the JMCN's mission to achieve earliest possible diagnosis, have best in class diagnostic and treatment practices, and continue to reach more patients and families affected by Primary Immunodeficiency around the world.
About Jeffrey Modell Foundation
Vicki and Fred Modell established the Jeffrey Modell Foundation in 1987, in memory of their son Jeffrey, who died at the age of fifteen from complications of Primary Immunodeficiency -- a genetic condition that is chronic, serious, and often fatal.
JMF is a global nonprofit organization dedicated to early diagnosis, meaningful treatments and, ultimately, cures through research, physician education, public awareness, advocacy, patient support, and newborn screening. The Jeffrey Modell Centers Network (JMCN) includes 781 physicians at 356 academic institutions, in 273 cities, 86 countries, spanning 6 continents and growing.
For more information about PI, visit www.info4pi.org or email the Jeffrey Modell Foundation at [email protected].
Media Contacts:
Vicki Modell, Jeffrey Modell Foundation, (212) 819-0200
Fred Modell, Jeffrey Modell Foundation, (212) 819-0200
SOURCE Jeffrey Modell Foundation
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