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La Fundación de la Epilepsia de Nueva York Metropolitana sera sede para la tercera caminata anual 'Into the Light' para el Conocimiento de la Epilepsia

  • USA - English

News provided by

Epilepsy Foundation of Metropolitan New York

Sep 10, 2014, 10:00 ET

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NUEVA YORK, 10 de septiembre de 2014 /PRNewswire-HISPANIC PR WIRE/ -- La comunidad de la epilepsia de Nueva York marchara el 21 de Septiembre, 2014 en la tercera caminata anual 'Into the Light' para el Conocimiento de la Epilepsia, la cual se llevará acabo en el South Street Seaport. Organizado por la Fundación de la Epilepsia de Nueva York Metropolitana (EFMNY), este evento, ha servido, desde su inauguración, para promover la conciencia pública, los programas educativos y celebrar la diversidad y fortaleza de la comunidad de epilepsia.

1ª en cada 26 personas desarrollará epilepsia en algún punto en su vida. Por favor venga y participe en los esfuerzos continuos de la EFMNY para impactar significativamente la vida de aquellos afectados. La solidaridad de la comunidad y las muestras de apoyo para los equipos de esta caminata les demuestran a estas personas que no están solos.     

Equipo Valentina

El día que Paula Cruz atestiguó el primer ataque epiléptico que sufrió su hija Valentina, de un año de edad, fue el día que sus vidas cambiaron. Paula recuerda, "Valentina empezó a llorar y cuando mi esposos la alzo para cargarla, comenzó a tener una convulsión." Cundió el pánico y Valentina fue trasladada de urgencia al hospital. A pesar de varias pruebas que resultaron normales, los ataques continuaron, y eventualmente la pequeña Valentina fue diagnosticada con epilepsia. Su neurólogo y sus padres todavía no saben que causa sus convulsiones o cuando ocurrirá la próxima, y es esta incertidumbre que promueve su deseo incesante por respuestas y soluciones.        

Un aliado firme y constante en esta búsqueda es la Fundación de la Epilepsia de Nueva York Metropolitana, cuya Directora Ejecutiva, Pamela Conford, MSW, reconoce que el no saber cuando los ataques se presentaran, es uno de los aspectos más difíciles de la epilepsia. "Tener un sentido de control sobre su propio ambiente es importante, y la imprevisibilidad y cualidad episódica de las convulsiones hace eso imposible." La EFMNY se esfuerza en proveerle a miles de personas un sentido de control a través de educación, recursos, promoción, apoyo de programas, y referencias, de modo que nadie se encuentre obligado a navegar las complejidades de un diagnostico de epilepsia solo.  

El equipo Valentina es uno de muchos equipos participando en el evento este año. Para aprender más sobre la caminata 'Into the Light' para el Conocimiento de la Epilepsia y obtener información sobre los equipos participantes por favor visite https://www.crowdrise.com/intothelight2014      

The Epilepsy Foundation of Metropolitan New York

Fundada en 1967 la Fundación de la Epilepsia de Nueva York Metropolitana (EFMNY) se mantiene como la única agencia de servicios humanos en la Ciudad de Nueva York que esta exclusivamente dedicada a servir a la comunidad de epilepsia, a través de servicios integrales de apoyo social en cada uno de los cinco barrios; con educación, servicios de vinculación, y promoción, distribuidos hasta el Condado de Westchester. El EFMNY dirige la lucha para detener los ataques, encontrar una cura, y vencer los desafíos que presenta la epilepsia. Dedicados a servir, educar y extender la conciencia publica, la EFMNY está dotada con profesionales de sectores diversos, incluyendo médicos, trabajadores sociales, psicólogos, y expertos en salud pública. Este completo e integrado enfoque ha solidificado a la EFMNY como un recurso principal para la comunidad.  

http://www.epilepsyintothelight.org/register/
http://www.efmny.org/ 

FUENTE Epilepsy Foundation of Metropolitan New York

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