PR Newswire: news distribution, targeting and monitoring
 

Leading Researchers to Share New Treatments at Fragile X International Conference

 

DEARBORN, Mich., July 22 /PRNewswire/ -- Accelerated research findings leading to potentially significant new treatments for fragile X syndrome (FXS) will be presented to nearly 1,000 family members and professionals at the 12th International Fragile X Conference in Dearborn July 21-25.

Nearly 200 speakers — many from the world's leading research universities — will describe the latest treatments for symptoms related to the mutation of the Fragile X gene and powerful new medications being researched. Multiple early trials are under way of drugs that show promise for treating the core causes associated with FXS, the world's leading known cause of inherited intellectual disability (formerly referred to as mental retardation). FXS is also the most common known, single gene cause of autism. Scientists are studying FXS as a possible model for better understanding the role that genes play in autism. FXS today affects approximately 100,000 Americans. Another estimated one million are carriers of the Fragile X mutation and at risk of passing it on to their children.

Thirty conference topics will include academics, assisted communication, the relationship between autism and FXS, financial planning, behavior and medical interventions, and occupational and speech therapy. There will also be an increased number of topics focusing on the other Fragile X-associated Disorders such as fragile X-associated tremor/ataxia syndrome (FXTAS), a Parkinson's-like condition causing tremor, balance and memory problems in adults, and fragile X-associated primary ovarian insufficiency (FXPOI), a condition that can result in reproductive problems for women including premature menopause.

"The biggest benefit to attending the conference is the opportunity to connect with other families, feel supported, learn new techniques, behavioral interventions and coping strategies, and discover the latest shared research by some of the world's leading Fragile X clinicians, educators and psychologists," said Linda Sorensen, associate director, National Fragile X Foundation.

The biennial international conference will include a celebration of National Fragile X Awareness Day on July 22, proclaimed this day by Congress in 2000.

For more information, visit the National Fragile X Foundation web site at FragileX.org.

SOURCE National Fragile X Foundation

Back to top

RELATED LINKS
http://www.FragileX.org

Custom Packages

Browse our custom packages or build your own to meet your unique communications needs.

Start today.

 

PR Newswire Membership

Fill out a PR Newswire membership form or contact us at (888) 776-0942.

Learn about PR Newswire services

Request more information about PR Newswire products and services or call us at (888) 776-0942.

Featured Video

 
  • Print
  • Email
  •   RSS
  • Share it  
  • Blog it  
  • Blog Search  

Journalists and Bloggers

Visit PR Newswire for Journalists for releases, photos, ProfNet experts, and customized feeds just for Media.

View and download archived video content distributed by MultiVu on The Digital Center.

Free Investing Newsletter from Investor Uprising!

Learn to navigate the world's financial system and profit from leading companies.  

Register for Investor Uprising, the people's investment site, for a free weekly newsletter, information, education and premium research including our latest IU Confidential Report - "All That Glitters: The Ultimate Gold Report".

Advanced Search
Search
  
  1. Products & Services
  2. Knowledge Center
  3. Browse News Releases
  4. Contact PR Newswire