REDONDO BEACH, Calif., May 27, 2016 /PRNewswire-USNewswire/ -- May is National Prader-Willi Syndrome Awareness Month and celebrated by hundreds of families across the state who have a loved one diagnosed with Prader-Willi syndrome (PWS).
Prader-Willi syndrome impairs growth, causes weak muscles, developmental delays, and severe behavioral symptoms similar to Autism. Its hallmark and most life-limiting symptom is an insatiable appetite no matter how much food is eaten. Unmanaged, PWS causes morbid obesity and premature death. PWS is not an eating disorder; it results from missing genes. No known medication controls or even reduces the drive to eat. People with PWS cannot live independently. Without 24/7 supervision for the entirety of their lives they will die prematurely as a result of choking, stomach rupture, or from complications caused by their behavior or morbid obesity. Parents and care providers of someone with PWS experience some of the highest levels of stress. Today there is hope. With an accurate diagnosis and appropriate supervised care, people with PWS can live healthier and happier lives.
Prader-Willi California Foundation is sponsoring its 16th Walking for Prader-Willi Syndrome event on June 26 in San Francisco at Crissy Field West Bluff Picnic & Warming Hut area under the Golden Gate Bridge. Registration begins at 10:30 am; the WALK starts at 11:00 am; the fun lasts until 2:00 pm. The general public is invited to pack a picnic lunch and enjoy the live band, face painting, and fun. Walk with us in person or support us online to bring smiles and health to hundreds. Be a part of something big and meaningful!
Prader-Willi California Foundation is the only organization in California dedicated solely to providing education, support and advocacy services to people with PWS, their families, and professionals. For more information visit www.PWCF.org/WalkingForPWS or call the PWCF office at 310-372-5053.
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SOURCE Prader-Willi California Foundation