GENEVA and WASHINGTON, Dec. 19, 2012 /PRNewswire-USNewswire/ -- This is our first task, caring for our children. It's our first job. If we don't get that right, we don't get anything right. That's how, as a society, we will be judged. (Obama 2012)
"The Little Ambassador," Ariana-Leilani King-Pfeiffer is a 9-year-old dual German and American citizen, with only a German passport, currently living in Washington, DC. For four years her untreated life-threatening very rare blood and bone marrow disorder Severe Chronic Neutropenia (SCN) is followed by Dr. Scott N. Myers, MD, Medstar Georgetown University Hospital, Pediatric Oncology Center. Untreated SCN leads to toxic shock, loss of limbs or loss of life. Since she is on the Severe Chronic Neutropenia International Registry, treatment with neupogen is free for her.
…. can we truly say, as a nation, that we're meeting our obligations? Can we honestly say that we're doing enough to keep our children, all of them, safe from harm? (Obama 2012)
World SCN experts, Professor Dr. Karl Welte and Professor Dr. David Dale, Co- Directors of the Severe Chronic Neutropenia International Registry (SCNIR), the longer SCN is untreated, the greater the risk that she will die from a common infection.
They will suffer sickness and setbacks and broken hearts and disappointments, and we learn that our most important job is to give them what they need to become self-reliant and capable and resilient, ready to face the world without fear. And we know we can't do this by ourselves. (Obama 2012)
The German Embassy, organization, individuals, and experts, including, Innocence in Danger International, Avalon-Bayreuth, Weiser Ring and Justice for Children, and Victims Rights Foundation all spoken out for Ariana-Leilani to receive neupogen, second opinion, and independent expert medical care, and full examination.
….And in that way we come to realize that we bear responsibility for every child, because we're counting on everybody else to help look after ours, that we're all parents, that they are all our children. (Obama, 16 December 2012)
Ariana-Leilani highlights the problems for all children who are not protected, regardless of nationality within USA borders whose human rights are recognized in 193 countries worldwide. The UN Convention on the Rights of the Child, signed by USA 20 years ago, but not ratified. Thus, all the worlds' children within USA borders loose their internationally recognized human rights they have in 193 other counties. After all protection systems have failed, from 125 countries 5000 people signed a petition to President Obama (USA) and Chancellor Merkel (Germany) to Save Ariana-Leilani.
We know we're always doing right when we're taking care of them, when we're teaching them well, when we're showing acts of kindness. We don't go wrong when we do that. (Obama, 2012)
Yes, President Obama, we all "Bear Responsibility for Every Child" including the life of Ariana-Leilani, Now is the time for you and Chancellor Merkel to act to save Ariana-Leilani King-Pfeiffer.
Ariana-Leilani Children's Foundation International: http://ariana-leilanifoundation.org
Save Ariana-Leilani Coalition www.ariana-leilani.org
SOURCE Ariana-Leilani Children's Foundation International