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The National Organization for Rare Disorders (NORD) released its annual State Report Card, which grades each U.S. state on critical issues impacting...
Today, the National Organization for Rare Disorders (NORD®) launched a new education series in English and Spanish titled, "Rare Disease Drug...
WHAT: Join the National Organization for Rare Disorders (NORD) Oct. 15-17, 2023 in Washington for the Rare Diseases and Orphan Products Breakthrough...
The National Organization for Rare Disorders (NORD®) announced three new grant funding opportunities related to the following rare diseases:...
The Galactosemia Foundation and the National Organization for Rare Disorders (NORD)® today announced they have jointly published the galactosemia...
Today, the Centers for Medicare and Medicaid Services (CMS) finalized a key component of the Inflation Reduction Act's Medicare Drug Price...
Today, the National Organization for Rare Disorders (NORD) announced the addition of nine new Rare Disease Centers of Excellence, bringing the total...
The National Organization for Rare Disorders (NORD) announced today that Emmy Award-winning journalist and NBC News Chief White House correspondent,...
National Organization for Rare Disorders (NORD®) Founder and past President Abbey S. Meyers, PhD, former U.S. Rep. Jaime Herrera Beutler of...
WHAT & WHEN: February 28th marks Rare Disease Day – a day designated to driving awareness and change for the more than 25 million Americans and 300...
The National Organization for Rare Disorders (NORD®) today published the latest edition of its annual State Report Card, which for the past eight...
On February 28, 2023, the rare disease community worldwide will celebrate Rare Disease Day. Now more than ever, it is important to highlight the...
In a letter authored by NORD and signed by 126 organizations representing or treating patients impacted by rare diseases, advocates call on...
Today, the Rare Disease Diversity Coalition (RDDC), the nation's leading voice for alleviating the disproportionate burden of rare diseases on...
Following the passage of H.R 6833, Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), issued the...
This week, the rare disease community will celebrate the fourth annual Rare Cancer Day. Spearheaded by the National Organization for Rare Disorders...
The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP®) hosted an all-day workshop and annual meeting September 13 and...
The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP®) will host its in-person annual workshop on September 13 and 14...
The NORD® Rare Diseases & Orphan Products Breakthrough Summit® – the most highly anticipated, global rare disease conference of the year, every year...
Following the passage of the Inflation Reduction Act, Peter L. Saltonstall, President and CEO, the National Organization for Rare Disorders (NORD),...
This week, the National Organization for Rare Disorders (NORD®) hosted the Living Rare, Living Stronger NORD Patient and Family Forum, NORD's annual...
Today, Governor Jared Polis signed Senate Bill 186 (SB 186) into law to create a Rare Disease Advisory Council (RDAC), making Colorado the 10th state ...
Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions to establish a permanent Rare Disease Advisory...
The National Organization for Rare Disorders (NORD) applauds efforts of Congressional leaders to protect the Orphan Drug Act (ODA) and ensure proper...
Today, Maine's rare disease community celebrated the passage of Legislative Document 972 (LD 972), which officially establishes a Rare Disease...
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